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The Little Purse

I know this is a first world problem but I wanted to mention it.

My mother in law is THE best mother in law in the whole world, she buys me flowers for mother's day every year! And I love that she does that.

She visited us in Ireland last April from Vietnam (in a nutshell, she is splitting the next two years between Vietnam and America, waiting patiently for my father in law to retire). And as you do when visiting from an exotic country, you bring presents.

She brought a collection of lovely items which were to be passed along to my family members if I didn't think I would use them.

I try to be the opposite of a pack rat because I like to leave room in my house for people and not fill it with lots of stuff that I never use.

I had passed on three items at this point, and we came to a lovely, hand made, perfectly sized zip purse, big enough to fit a phone, keys and a little loose cash. I've seen these purses and in fact my mother in law uses one regularly.

She didn't understand how I didn't use one! Of course it has taken me several months to figure out why it is I've never used one. Although, you probably figured it straight away?? Especially if you are a woman with type 1 diabetes.

I do however, just grab my keys, stick my phone in my pocket and carry my blood glucose meter in my hand when I do the school runs.

I'm a different species; the kind that needs to grab my blood glucose meter and glucose in addition to the phone, keys and cash. At that point, I might as well go the whole hog and bring a bag!

This tote was a freebie from the Friends For Life 2015 conference I recently attended. I was reluctant to take it at first because it's a very bright yellow but my "Loot" forced me to take it. It is a great bag - no matter how much I put into it, it never felt heavy! It has been tested:-D
This is for you Kim Hislop! 

Diabetes safety is......

​having a spare blood glucose meter.

Blood glucose meters are machines. Machines sometimes fail. What is your back up plan if your meter fails? Do you have a back up plan?

My two decades with diabetes has taught me not to rely completely on one gadget. I have a meter that I like to use most of the time, I have a meter that fits in my pocket when I'm just running out for school pick ups, I have a meter that I keep in the bedroom and I have a spare.

Probably not the best idea that they are all from the same company but three out of the four of them use the same strips and so makes life that little bit easier. And I do have a separate ketone meter that can be used for blood glucose.

So, I don't ever have strip waste and I have loads of options when it comes to blood glucose testing.... and no excuses😟

Register today for Thrive-abetes; The Thrive with Type 1 Diabetes Conference

I'm hoping that, by now, a lot of you have heard about Thrive-abetes? Thrive-abetes is a conference that I am, up to my neck, involved with. And it's very exciting! I can't wait to be in a room with 100 other adults with type 1 diabetes!!!

What is Thrive-abetes?

Thrive-abetes ; The Thrive with Type 1 Diabetes Conference and Exhibition is a one day conference for parents of children with diabetes and for adults living with type 1 diabetes. It takes place in Maynooth, Co. Kildare on Saturday the 3rd October 2015.

What is Thrive-abetes going to offer?

"Thrive-abetes" is a first-of-it's-kind event in Ireland - a conference organised by people with type 1 diabetes for people with type 1 diabetes!

This Type 1 Diabetes conference is going to focus on the psychological impact of living with a chronic, lifelong illness. We aim to provide “Inspiration, Motivation and Information” to people living with type 1 diabetes, both parents of children with diabetes and adults, at our conference.

Our speakers include internationally renowned diabetes healthcare professionals, living with type 1 diabetes and nationally recognised diabetes healthcare professionals.

View our conference programme here.

Conference tickets cost €35 per person, or €60 for two tickets. Registration is open through this link https://thrive-abetes.eventbrite.ie. Lunch and refreshments will be provided to all delegates. More details about the Thrive-abetes schedule is available from http://thrive-abetes.blogspot.ie/ or by sending an email to thriveabetes@gmail.com.

If you are interested in making a weekend of it The Glenroyal Hotel has a discounted rate for all Thrive-abetes Delegates plus a number of rooms blocked off for the conference. When you are booking you must quote Delegates Reservation No 172691. interested Room rates are available here.

Continuous Glucose Monitoring - my second week


My first week with my CGM was very much in awe of it - my second week was about using the information to reign in my diabetes management.

People get anywhere between seven to fourteen days out of a continuous glucose sensor. I was lucky enough to get reach over 14 days.

In my second week, I started to look at the data in detail and find trends. I downloaded the data from my insulin pump to the Animas software programme, Diasend. With this software I can create reports that tell me what my average blood glucose readings were at each time of the day for any time period I choose.

In particular, I wanted to address my night time basal insulin rates and the fact that it bounced up and down like a rubber ball from 10:30pm til 4am. I selected my date as Monday through to Friday. From the report created, it looked like my evening basal rates were too low and my dawn phenomenon cover was too high.

I made the adjustments and have had a couple of hypos, so I still need to tweak my rates. However, my one and only sensor, because I had it on trial, had bitten the dust and I now feel like I'm flying blind.

I really miss having the extra information to make daily decisions about my insulin dose. The CGM not only gives you an indication of what your blood sugar is, it also indicates, with an arrow, in which direction it is heading. Or a double arrow if it's going there quickly!

This information is soooo useful especially at bedtime. A blood sugar reading of 6.8 mmol/L(122 mg/dl)and holding is much better than 6.8 and dropping.

I hope to apply to the HSE long term illness scheme for funding for a CGM but with holidays and a family wedding it will be, at least, September before I knuckle down to that. 

Are you a bad diabetic?

Take a deep breath everybody! I can just picture the steam coming from all of your ears, but let me tell you that in this instance, where I was asked this question, the only purpose it would serve would be to accelerate global warming!

I have never been asked this question before in all of my 22 years living with type 1 diabetes and it really caught me off guard.

Firstly, the person who asked had a number of alcoholic beverages taken so any worthwhile, educational response from me was going to be a complete waste of time! So frustrating!!

Secondly, this person was a very young, public health nurse! ($%^@*#%!!!) A little more frustrating.

How did I respond? Well! I first made faces as if I had swallowed a wasp while my brain tried to figure out how to respond. I think I may have scared her and she would have run away if she wasn't trapped on a bus with me.

I was trying to figure out if she meant if I was a bad diabetic because I didn't manage my diabetes well? Or bad because I had the "worst" kind of diabetes?

So after I made my faces, I said "I don't understand the question?" She probably thought I was the dope:-) Then, she asked if I was a insulin dependant diabetic? Now we're starting to make sense... just not enough for me to invest my time with her on this occasion.

At some point, I will sit down with this child and explain some diabetes etiquette and a few other pieces of information about diabetes.

For now, I will give her the benefit of the doubt and assume that she knows a little more about diabetes that alcohol would allow her to express.

Keep calm, they're only words!

My CGMS Awesomeness! My First week.

Disclaimer: I am not a scientist, nor do I have anything close to a medical degree. The views and opinions expressed are my own interpretation of the information and training I have received with my diabetes over 20+ years.

What is a CGMS?

CGMS is Continuous Glucose Monitoring Sensor. It consists of a sensor pod, which contains a very thin needle-like component inserted under the skin. It's about an inch long, the width of two strands of hair and just as flexible. The sensor reads how much glucose there is in the liquid between the cells called interstitial fluid. And it take this reading every few minutes.

This is the glucose sensor with
the transmitter attached.

The CGM has a transmitter attached to the sensor pod which sends the data from the sensor to the receiver. In my case, the receiver is built into my Animas Vibe insulin pump.

A finger pricker blood glucose test on a Blood Glucose Meter measures the amount of glucose in a drop of blood.

It has taken a decade (or two) for the technology in a CGM sensor to match the accuracy of a Blood Glucose meter but in my opinion it was worth the wait.

The Awesomeness!

I can press one button on my pump and have an indication of where my blood sugar is.

I was driving to visit my Mother who lives an hours and a half away - I tested before leaving and I was fine to drive but my CGM alarm went off about 45 minutes into the drive alerting me that my BS were less than 4.4. There were 4.1 and dropping and as the saying goes "don't drive under 5". I wouldn't have caught that low until I was well into it.

A couple of days into sensing, I figured out how to view the 6, 12 and 24 hour graphs. I was so surprised to see that my overnight blood glucose readings are not AT ALL like what I thought they were!

I have done basal rate testing occasionally but was never surprised at the results. I go to bed in range and wake up in range but according to the CGM data there is a LOT of bouncing in between! I had been catching the in range readings every two hours. But in between those two hours was an up-swing. I never would have suspect that.

Whoa!

My sisters hen night was two days into wearing the CGM. So with a couple of beers in my system (and only a couple), and a restaurant meal the predictable happened. My CGM alarmed every 30 minutes to remind me that my blood sugars were in the high teens. But it told me if they were still rising or if there were holding steady which meant that I had more information to address the highs (or high, as it was one long continuous high).

The Meeh!

So, I'd been wearing the CGM on my upper arm for a few days and apart from hitting off a couple of doors I had no huge problems. Just one minor issue, my arm where the sensor is placed is a little tender. So, if I get lucky enough, to be able to use this device again, I would explore other areas to place it.

The layers of tape trying to keep it secure are getting a bit itchy.

My one big concern, at this moment, is that the weather has gotten warmer (finally) and the CGM is visible if I wear a short sleeved t-shirt. I wore a light cardigan over my T the first day. The CGM makes my diabetes visible and I know it's going to be difficult to explain this device when I'm still learning about it myself. But I shall embrace this when I'm ready.

Overall, having the extra information from the CGM is great - I can't deny that. I would love to have one permanently. However, and this is an important however, I would never rely on it explicitly as what my blood sugar reading is. I still do my 8 finger pricker tests daily.