Type 1 Diabetes

To know or not to know? A CGM Story

I'm so, so tired! Yesterday afternoon we visited some friends. It was a family-style event where everyone brought something to feast on. The food was sooo good.

The diabetic downside is that while the food is really good I had no idea what the carb count was and therefore, no idea what my blood sugar was going to do.

I've been using a CGM since last November and this has been really beneficial with reigning in those blood glucose numbers.

I could track my BG's while I was eating and even afterwards while talking to people using my CGM and I was quite impressed at how well my blood glucose levels were doing.

However, it was late at night, heading towards the wee hours when my BG's started to climb, and climb. Oh and climb.

If I didn't have a CGM I would have taken a little insulin and just gone to bed assuming that this action would have taken care of the elevated levels perfectly.

This is not what happened at all. I have my High Glucose Alert on my CGM set to alarm when my blood glucose levels are above 15.5 mmol/l. And this alarm will continue to go off every 30 minutes until my BG's come back below this level.

My first indication that my blood sugars were rising came at 10pm when my alarm went off. I calculated some correction insulin and hoped for the best.

The arrow on my CGM fibbed and said that my BG's were holding at 15 mmols (279 mg/dL) leading me to believe that they were done going up but this was definately not the case for 2 hours.

It's so difficult to sit and wait. I know that my insulin takes AT LEAST 20 minutes to start working.

11.20pm alarm indicating a higher BG. More insulin 11:40pm more 12:30am more 1:40am some more

A CGM Story

Would I have been better off living in ignorance where I took an insufficient amount of insulin and just slept through the night spending 6 hours til morning way above a good BG?

Or was it worth it to spend those 4 hours (2 of them trying to sleep) to get it down to a more reasonable number and start a new day well?

I feel I did the right thing for me on this occasion. I felt that I learned something more about my diabetes because of it and I felt that I prevented a blood glucose reading of above 20 mmols/l

I'm tired today but the next time I know what to do to get to sleep. :-)

A simple task that turned offensive

The HSE approved funding for my Dexcom G4 continuous glucose system since November (love it!); I received my start up kit through funding from HSE’s community care budget. My Animas rep called me in January to tell me that my Dexcom G4 Platinum Sensors had been, finally, approved funding for them through Long Term Illness scheme. All I had to do was get my GP or consultant to update my long term illness book and bring it to my chemist.

In the meantime, she rang my chemist to explain that all that needed to be done was underway and gave them all the information they needed to order my sensors. Yay!

Dexcom Sensors

As I wasn’t due to meet my consultant until April (approximately) I decided to go my GP. I had everything I needed in hand. I knew exactly what I had to ask for. What could go wrong?

LORD ABOVE, GIVE ME STRENGTH TO DEAL WITH OTHER PEOPLE’S BAD DAYS.

After waiting one hour to be seen by my gp I left within 10 minutes, without what I needed. I met with the most “by-the-book” (yeah like anything about diabetes is by the book) and “professional”(not) GP, who by the way assured my on next visit that he WAS quite popular!

What happened?

Well, this chap, who is filling in for my regular gp, decided to focus on semantics. My LTI book had not been updated for 6 years, which is kind of a technicality but kind of not. He questioned me like an FBI agent about every item he had to list. He was very concerned about if I needed it every month or not??? It didn’t actually matter?!? But I didn’t know that yet.

I had to explain why things like a Hypo emergency kit, or Novorapid flex pens, needed to be included on my script for emergency situations.

All of a sudden, he threw his pen down and said I really don’t know what I’m doing here, can you go to your chemist and get a list of all your meds? Even though, it was right there in front of him! He added something to the effect of diabetics come in here asking for all this stuff that I don’t know about. (?!?!?!).

It was clear to me that he was done with me. And I was done with him. I was having a difficult time remaining calm and trying to figure out what to do.

I left in a state and decided to go direct to the source of all information required.

He gave me the impression that his problem was he didn’t know how to fill out my prescription as required by the long term illness scheme. So! I hopped into my car and drove over the Long Term Illness Section in Ennis.

I explained what had just transpired and asked for a guide for snotty GP’s on how to fill out prescriptions for the LTI scheme. The lady was really nice and explained everything. But I then had to remember it!

What I learned in the Long Term Illness Dept that I did not already know.

She told me the following;

  • My GP should always have an updated list of all the medicines I use - regardless of who writes the prescription. My consultant should be writing to him with this information. (Does that actually happen? I know this wouldn’t be high on my priority list.)
  • The LTI book does not need to be updated every six months. (The book itself says it does, the chemist says it does; I’m going with “it does”.) However, updated does not mean submitting it to LTI every six months. It means that the GP/Consultant writes out the prescription in the space (the yellow pages) provided every 6 months and you bring it to your chemist.
  • If the item being prescribed is on the HSE’s List of approved medical supplies for diabetes known as “Core List F”, my GP only needs to write what the item is, he does not need to write a quantity. Once the item is on this list it is approved. So, again, no need to submit to LTI just take it straight to the chemist.
  • However, if the item is not on Core List F but is on the “Special Product List”, then a quantity may be required.

If the item you are after is not on either of those lists this page might help you.

Ok! Onwards! I went home. All the while I practised deep breathing. As soon as I got home I called the GP office and rescheduled my appointment (another reason to be p****d off).

Next day, I arrive to his office to receive a “what can I do for you today?”(?!?!?!). At this point, I found it more than very difficult to stay close to calm and civil, while explaining why I was offended, frustrated with him, and annoyed.

All of which was news to him! He even had the naivety to tell me this was the first time someone has a problem with his bedside manner and that he was actually quite popular in the practice. I knew I couldn’t tell him he sounded like a twenty year old creating his first CV because I wasn't trying to offend him like he did to me.

I never heard the words “sorry” or “apologise” during our 15 minute consultation. No stepping down off the deity pedestal AT. ALL.

And so, I won’t be going back to him and I know it’s no skin off his nose. He can continue to be arrogant and emotionally immature….. until it bites him in the ass:-)

Because you know what goes around comes around - always.

A Shout Out to My Home Team

I am a huge champion for peer support to help us live with type 1 diabetes. My type 1 diabetes friend in Clare and around the country have kept me positive and fighting for almost 10 years now. But, as it's Valentine’s Day and the month of his birthday, this post is a tribute to my home team. My husband has been my very biggest supporter and cheerleader for over 15 years. Intel-Headshot

From that very first day, when he asked me for books on type 1 diabetes so that he could learn something about it, to every day I have to use the code words “low”, “hypo”, “help” or “I’m fine” (biggest codeword ever for I’m not fine). Thankfully, that’s not too often.

He came to my most recent hospital appointment so that he could learn to insert my Continuous Glucose Monitoring sensor for me. 

He shares research articles he finds in The New York Times- he actually brought my attention to the Bionic Pancreas first all of those years ago.

He does 90% of the cooking (yes I know how lucky I am) and is always considerate of my carbohydrate, mmm, sensitivity.

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All of my best ideas get bounced off him and therefore improved by his input.

He is constantly reminding me of what I can do.

He volunteers with Diabetes Ireland on their national council, even though he does not have diabetes. He even got to meet President Higgins on his first official act as president, but that’s another story.

He makes me feel like there are two of us working hard to keep me healthy.

He is my Type 3 and my Valentine.

By the way, hun, I have a feeling I’m going to suck again this year for your birthday - sorry! #SpareaRose and post on a blog:-D 

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You Never Know Where People with Diabetes will Pop Out From

You never know where one of our comrade in arms will pop out from. We are everywhere! You may not think it but we are. My neighbour across the road from me who I've know for at least 5 years, only told me at Christmas that he has type 1 diabetes!  And here's another one for you.

I have no qualms about saying that as an Irish housewife I love going through the Aldi Supermarket weekly ad magazine. Always looking for a bargain, I am. Or a nice surprise. Just in case you are not familiar with Aldi, they don’t just do groceries, they also do “nice” things.

And so there's that very bright smile jumping off the page at me. Yeah, the kid’s cute too. But I’m taking about Stacey Moloney, fellow person with type 1 diabetes.

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I came across Stacey last year during the Irish Blog Awards. Stacey’s blog, Your Mindful Guide was one of the finalists in the Best Health & Wellness Blog category. She very generously allowed me to write a guest post on her blog to promote the Thriveabetes conference in 2015.

She attended Thriveabetes 2015 and we got to meet face to face, ever so briefly. And she wrote about her experience at it. See it here.

Stacey has lived with type 1 diabetes since she was 9 years old and was hospitalised for two weeks when she was diagnosed. She is now in her twenties and let me tell you she is living every minute of it. Diabetes is NOT holding her back.

The aim of her blog; Your Mindful Guide is to spread positivity, change the 'tree hugger' stigma attached to recycling and make it accessible, fun and trendy. Are you ready start your journey to becoming healthier in every sense of the word, mind, body, and soul?? Then you share the same passion as me. This is my life – to inspire and encourage you to live your life the best way possible and learn how to become more mindful.

As well as being owner of her own website and blog she is a marketing executive at WEEE Ireland, a non profit private company that promotes recycling electrical appliances, equipment and batteries, which is why there is such a nice photo of her in the Aldi catalog. Aldi Ireland are the WEEE Ireland Retail Battery Collector of the year 2015.

Stacey with Joe Solowiejczyk

You really do not know where you will meet fellow people with diabetes but if you talk about your diabetes you might meet a friend.

Welcome to Blood Sugar Trampoline

A combination of my personal blog about living with type 1 diabetes in Ireland and sharing information I collect along the way. I feel that living with type 1 diabetes is sometimes like being on a trampoline, except you can never get off. It doesn't take long for us to get tired of all that bouncing. It's not any fun.

Here, we can bounce together, keep each other steady, and cheer each other on when we get tired and want to get off the trampoline.

Spare a Rose; Give a child with diabetes a chance

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Imagine living in a country where you could not afford to buy insulin for your child with type 1 diabetes? 

I'm so lucky that I was born and live in Ireland. I can go to a chemist at any time and walk out with a month's supply of insulin, test strips and whatever else I need to live. Without paying a cent!

If I was born elsewhere that would not be the case. I would not be able to afford my insulin and I would not be here today.

Yesterday, I donated money that I had set aside to Spare A Rose and give a child with diabetes a chance at life for a year.

Spare a Rose, Save a Child is the brainchild of the Diabetes Online Community in North America. The idea being to take the typical “dozen roses,” so popular on Valentine’s Day, and just buy 11, save just one rose and donate to spare the life of a child. 

The Spare a Rose, Save a Child campaign is directed at raising awareness and funds for the Life for a Child program, which is an International Diabetes Federation program aiming to take “contributions from donors go to established diabetes centres enabling them to provide the ongoing clinical care and diabetes education these children need to stay alive.” 

The idea was to take the typical “dozen roses,” so popular on Valentine’s Day, and save just one rose to spare the life of a child. “Spare a Rose, Save a Child” is simple: buy one less rose this Valentine’s Day and share the value of that flower with a child with diabetes in the developing world. Your loved one at home still gets flowers and you both show some love to someone across the world who needs it. From Kerri Sparling, Sixuntilme

Please join me! Donate here.

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