Thrive-abetes; Thrive with Type 1 Diabetes Conference

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I was lounging on my couch beside my hubby one Saturday afternoon looking at my registration for Friends for Life UK (FFL) and thinking to myself "Why do I have to go to London to avail of an inspirational and motivational conference like FFL?"

My ever-supportive and crazy-ideas husband said "Sure you could pull off something like that, NO PROBLEM!" Sometimes I wonder about him?
Well that's where the idea for Thrive-abetes; Thrive with Type 1 Diabetes came from.
Well, what is Thrive-abetes?

Thrive-abetes is an abbreviation of “Thrive with Type 1 Diabetes”. It’s a one day conference for parents of children with diabetes and adults living with type 1 diabetes, taking place in Ireland on Saturday the 3rd October 2015. The event is supported by Diabetes Ireland, the national association for people with diabetes in Ireland (Registered Charity No. CHY 6906).

Why do I need this event to take place?
I want to meet more people with type 1 diabetes; I want to hear their stories and draw support from them. I also want to learn more about ways to cope with my type 1 diabetes every day.
I am fortunate enough to meet some people with type 1 diabetes face to face but others are not. Through the amazingness of FaceBook, I've learned that others want what I want. We have done the research to prove it!
This conference is needed because one of the best sources of support and information to families with Type 1 Diabetes is other people with Type 1 Diabetes. We would like a non-virtual place to meet, share and support each other.

This type of event does not exist in Ireland.....until now!

What is Thrive-betes going to offer?
Our Type 1 Diabetes conference is going to focus on the psychological impact of living with a chronic, lifelong illness. We aim to provide “Inspiration, Motivation and Information”  to people living with type 1 diabetes, both parents of children with diabetes and adults at our conference.
We have invited  speakers who are internationally renowned in the diabetes community and we are confident we can attract a minimum of 200 delegates. We are also being supported by Diabetes Ireland, the national association for people with diabetes in Ireland.
You can find out more about Thrive-abetes here.

Why do we need to raise money?

Some of the cost of this conference will be raised through delegate registration and exhibitor fees but we still need to raise €6,000 to ensure that this event takes place.

We have launched a crowdfunding campaign with an Irish company to try and secure as much of this amount as possible. All donations will be directed to Diabetes Ireland (registered charity no. CHY 6906) and would be greatly appreciated.

How can you help?

The success of a crowd-funding campaign depends HUGELY on making as many people as possible aware that the campaign is happening. 
The first thing that people can do to help this conference happen is to post this link; https://www.icrowdfund.ie/campaigns/thrive-abetes-thrive-with-type-1-diabetes-conference/ on your social media page with your reasons why you want this conference to happen.

The next thing I would ask people with type 1 diabetes in Ireland to do is to consider asking your employer to donate to the campaign.

Then, if you can think of any other businesses or employers that would give generously to this campaign, contact them or ask me to contact them on your behalf.

Maybe you don't know of any businesses off-hand but you can also help us by posting on all social media. You can copy my post on Facebook or share it.

Please help us make this happen!!!

The National Diabetic RetinaScreen service.

Diabetic RetinaScreen was launched in 2013 and is an Irish government-funded screening programme that should ensure all people with diabetes over the age of 12 years will be offered a free annual diabetic retinopathy screening. The Diabetic RetinaScreen programme uses specialised digital photography to examine the eye.


Diabetes Ireland recommend that everyone with diabetes should have an eye screening once a year to prevent diabetic retinopathy and other diabetic eye complications.

So why did we need something new?
This service came about because not everybody with diabetes was getting an annual eye exam at all and because diabetic eye disease is still one of the most common causes of blindness in Ireland.


Another benefit of this system is that it provides a photograph of the retina, which means that your images can be viewed side by side, year on year, to check for changes.


Diabetic retinopathy can be treated if caught in time.

If you have diabetes, it is important to have the back of your eyes effectively screened every year.



How does it work?
This is my experience with this new service and I have understood that it works this way for most people. Although, I have read and heard about some issues that people have had getting on the register but I think most of these teething problems have been ironed out.

When the service was launched the public was encouraged to check that they were on the RetinaScreen register. The register was created from the information provided by healthcare professionals (GP's, diabetes clinics and endocrinologists).


I called the number on the website and the lady who took my call said that I was on the register but she would check that all the details were correct. We discovered that they had a very old address for me which meant that if I hadn't checked I would not have received my letter. I was glad I checked.

It's important to note that Diabetic RetinaScreen only accept referrals from healthcare professionals. If you're not on the register you need to request that your GP, diabetes clinic or endocrinologist puts you on it.

In October, I received a letter asking for my consent to be invited for a screening. This required me to call a number and agree verbally. This was easy too.

Within 3 weeks I received my letter of appointment for the 27th November 2014 at my local Specsavers shop.


I did have to call RetinaScreen to rearrange my appointment because I did not have someone to drive me on the date. This was painless to do also and the new appointment was within two weeks of the original date.


The day of my appointment, I arrived promptly and did not have to wait more that a couple of minutes from someone to check me in. We filled in the short form and then I was taken into the back area for the pressure tests. This involved me placing my face into a chin rest and the Specsaver employee operated a machine that shot a quick blast of air into my eye. This might sound harmless and it was, but I found it extremely difficult to keep my eyes open long enough to complete this test. He told me they only needed one good one but that they do it a couple of times just to be sure they have what they need. OK.


This eye pressure test, is known as a tonometry is a part of every routine eye exam, it measures the fluid pressure inside the eye. Increased pressure within the eye can be a sign of glaucoma.


Once we had done this, I returned to a waiting area outside of this room. Within another couple of minutes I was taken into the sight test room by the optician. She did a brief sight test, took notes and then administered the "dreaded" eye dilation drops. 
She was so lovely, she kept apologising for doing what she needed to do. I assured her that I'd had the drops done more that a few times and there was no easier way to do it. I would be happy once I did not have to go through having to drops redone because she missed or they didn't take.


With the drops accurately administered I went back to the waiting area to wait for them to take effect. This took about 15 minutes. The optician, then, brought me into the same room that I had the tonometry test done.  She performed a couple more tonometry tests and took the photo of my retina and I was done!


The whole process took 30 minutes.


I had a letter in a couple of weeks with my results. The letter stated that I had background retinopathy in the back of my left eye. This was a bit of a shock as all previous eye exams were reported clear. I suppose having a digital image that the reader can zoom in on is hugely beneficial in this case.
My level of retinopathy doesn't require any treatment yet but at least I know to make sure I don't miss any eye appointments.
If you have diabetes and would like to check you are on our register, please ring Freephone 1800 45 45 55 and choose option 1.


Benefits.
  • Having a retina photo taken that can be used to compare the following years.
  • Not having to supply a useless urine sample (my local public diabetic eye clinic required this and it became a pet peeve that will cause me to go into a rant and I am stopping that right now, another time, another place).
  • Getting an annual eye screen, em annually and not every 2 or 4 years.
  • Because I am a low-medium risk patient I'm not taking time away from someone who needs treatment from a specialist right now.
  • People who are in the high risk category are fast tracked to an ophthalmic specialist.


Cons.

  • There are a lot of actions required to get to the point where you get a letter with an appointment.
  • That's the only one I can think of right now.

Happy New Year!

Oh My Gosh! I really don't want to see another mince pie for a looooonnnnnng time!

It's a new year! Some feel that it's a new beginning, a reset button, or a fresh start. For me, the day my children go back to school is the I stop using the phrase "because it's Christmas!" It's when I get back into my everyday routine and stop with the extra sugary treats and back to tighening up those wobbly bits by getting outside for my walk.

The New Year also brings the bombardment of new ways to adapt a healthier lifestyle, new "fad" diets, anyone see the Lidl and Aldi circulars with all the exercise gear?

Almost every website, social media page, newspaper or magazine has an ad for a new, fast way to lose those Christmas pounds. Really,

My favourite of these terrible ads was the Sunday Independent's claim that some people are genetically designed not to benefit from exercise!!! Who doesn't get any benefit from exercise???

Even if all you gain is the "happy" from the endorphins released through exercise, isn't that beneficial? Yes, a lot of people will not loose weight if the exercise, because they need to cut back on calories too but losing weight is not the only reason to exercise.

I exercise because it pulls all the wobbly bits in a bit, I can clear my head and shake off the cobwebs from my ever creaking joints. I also find it social as I was a bit with a friend. It's makes me feel like I've earned the right to sit for 30 minutes with a cup of coffee afterwards while I recover:-)

Exercise makes me feel good and, well, really, I don't care about any of the other benefits. That's good enough reason for me to get outside.

Christmas and Type 1 Diabetes.

Christmas is almost upon us and people with diabetes tend to approach holidays like this one with dread. We do tend to go a little bit insane with all the chocolate, boxes sweets, tins of biscuits, and mince pies.

Anyway, people have asked for a number of years at my support group about tips for dealing with Christmas and we've shared some valuable tips. Lots of them can be found on other blogs (sorry).

For me, Christmas is about one day. I don't have any office parties to go too, being a stay-at-home mum. I have a couple of coffee mornings with other Mums and I do have a birthday 9 days before christmas but I don't go nuts. It's more about the company than the food. I have dinner and cake and deal;-)

Christmas day is a "limited" day off from diabetes. I do my blood glucose tests, I guestimate the carbs as much as possible, I bolus and bolus conservatively and probably bolus some more. If I fancy the food I eat it. I stop when I'm full. We have potatoes A LOT in Ireland for dinner and on Christmas day I usually skip them altogether in favour of stuffing. It usually works out - call it a christmas miracle :-)

When we visit my husband's family in the US for Christmas there is usually so many activities going on that the food is an after-thought. Plus, there are so many of us that the goodies "disappear" extremely quickly.

I don't tend to sit around a lot on Christmas day either; we travel to my mothers down the country for dinner and once the dishes are done, we move ourselves to my brothers house for the present giving.

For others, Christmas Day usually isn't the problem though, it's the numerous parties, and giving into the grocery department's tempting treats in the 6-8 weeks that run up to Christmas. (When did we all start making this holiday about food?)

My approach is; for Christmas day, I let my hair down and don't worry about that one day. But for the rest of December all the rules apply and as soon as the children go back to school it's back to the old routine.

I hope you all find ways to cope with your Christmas and enjoy it.

I will be taking a break from blogging until the New Year, so....

Happy Christmas, Happy Holidays!!!

Elephants never forget... just get distracted

21 years with type 1 diabetes and this very seldom happens but it does happen. I did say to myself "how is it possible that I forgot to bolus for a meal?"

Then I reminded myself that it usually happens when a young person starts a sentence with "Mom ...".

Anyway, I very rarely forget to take my bolus insulin but this morning I did. It was breakfast. I usually catch the error when I'm expecting my insulin pump to notify me that it's been two hours since I bolused and that I should be my post-meal blood glucose test. This morning I had the added incentive of my weekly coffee morning and wanting to test before I left the house. 

I tested and I was 17.8 mmol/ls (323 mg/dl)!!! I knew I had started the day with reasonable (i.e. single digit) number, so I went into my pump history to see if I actually bolused. Surprise!!! No bolus, thank goodness for insulin pump histories.

I took my correction bolus of 2+ units and wondered how taking my insulin before breakfast can make such a HUGE difference? I have a medium sized bowl of porridge (I know, boring but reliable) and take 0.60 units which usually brings me in a little under the target for the two hours post-meal test. However, two cups of coffee later I'm on target for lunch.

I'm surprised that 0.60 units make such a difference, compared to the 2 units I needed to cover my breakfast two hours later.

I pause for thought!