Talk About Diabetes TADTalk 2018

A couple of weeks ago, I travelled to London to attend TADTalk 2018. TAD - Talking about Diabetes is in its third year and brings together individuals who have inspirational stories to share in the context of living with diabetes.

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The striking thing about the TAD events are they are completely about people living with diabetes and bringing them together.

So my post on TADTalk 2018 is going to revolve around all of those people who influenced me on this day and in order of appearance. But I would like to mention Emma from Scotland and Helen who I got chatting to over lunch:-)

Warning - I totally sat in the wrong spot for nice photos. So they are woeful!

A Message from the UK Prime Minister and person with type 1 diabetes: Theresa May

Prime Minister, Theresa May - no she wasn’t there but JDRF UK organised to record a message to us that was played. She quoted Sir Steve Redgrave: "Diabetes will have to learn to live with me."
I can’t think what the Irish equivalent of this would be???

  A Message from the UK Prime Minister and person with type 1 diabetes: Theresa May provided by JDRF UK

A Message from the UK Prime Minister and person with type 1 diabetes: Theresa May provided by JDRF UK

Event Chair and person with type 1 diabetes: Jen Grieves

Jen is a broadcast journalist who now works in online and social media for BBC Radio. Jen has been writing her blog: Miss Jen Grieves for almost ten years and has been known to Vlog also. 

  Event Chair and person with type 1 diabetes Jen Grieves

Event Chair and person with type 1 diabetes Jen Grieves

Presenter, Student and person with type 1 diabetes: Lydia Parkhurst

  Presenter, Student and person with type 1 diabetes: Lydia Parkhurst

Presenter, Student and person with type 1 diabetes: Lydia Parkhurst

Lydia was diagnosed at age 9 and is a JDRF UK ambassador, blogger at The Backpacker and the Pod, speaker and Diabetes UK camp volunteer. 

She was also celebrating because a couple of days earlier she handed in her final dissertation. Wahoo!!!

Lydia told us her diagnosis story and all the amazing things that living with type 1 diabetes has brought into her life: she’s been a guest at No. 10 Downing Street, met the Duchess of Cambridge.

She talked about her acceptance of type 1 diabetes as a teenager and how volunteering with JDRF made her realise: “Looking to cure diabetes was a dream. Learning to manage it every day was the reality”.

“Normal life is stressful enough without type 1 - Being your own doctor, dsn, dietitian & pharmacist can be overwhelming - physiological support is crucial”


Presenter and person with type 1 diabetes: Pete Davies

Pete Davies was diagnosed with type 1 diabetes as a baby in 1954. He took us through his journey of diabetes treatment and management and told us how lucky he was to have a mother who worked in healthcare and both parents believed he shouldn’t miss out on anything because of his diabetes. 

Pete was an inspirational speaker and entertained us with multiple anecdotes including the fact that he was treated by Dr RH Lawrence, who developed one of the earliest and largest diabetic clinics in the UK. The Lawrence Medal is awarded to patients who have been on insulin for 60 years or more.

Dr Lawrence was a person with type 1 diabetes and in 1922 he moved to Florence, Italy to live out his final days but in 1923 received the telegram below. " I've got some insulin come back quick it works"

 Telegram to RD Lawrence: "I've got some insulin come back quick it works"

Telegram to RD Lawrence: "I've got some insulin come back quick it works"

Pete also shared his thoughts on how unique type 1 diabetes is, his personal reflections and his personal advice. 

Pete’s positivity and optimism just bowled me over. Here was I struggling to comprehend 25 years and how long more. And there was Pete after 60 years and shouting “Bring it”.

 

Presenter, Pilot and person with type 1 diabetes: Mike Dunning

Mike was diagnosed only a few years ago but he was a pilot. This career had previously been off limits for people with type 1 diabetes. 

“In 2012, the U.K. became the second nation, after Canada, to issue insulin-treated individuals with Class 1 Medical Certificates for Commercial Pilot Licences. Ireland has since joined the list that allows insulin-treated diabetics to pilot airliners. The U.K. now has the largest cohort of insulin-treated pilots, and, Hine said, is leading the way in Europe and beyond to create and maintain employment and leisure opportunities for people with insulin-treated diabetes.” From - https://www.medpagetoday.com/clinical-context/diabetes/60174

Mike shared his diagnosis story and how he got back into the cockpit.


Presenter, Professional Cyclist and person with type 1 diabetes: Becky Furuta

  Presenter, Professional Cyclist and person with type 1 diabetes: Becky Furuta

Presenter, Professional Cyclist and person with type 1 diabetes: Becky Furuta

Becky is a professional cyclist with Team Novo Nordisk and is also a health care policy consultant. She was diagnosed at age 28 while also 20 weeks pregnant with her first child. Becky was told at her diagnosis by her endocrinologist that she would have to give up her cycling career because of her type 1 diabetes. 

"I didn’t hear 'no'. I just heard things just might be a bit more difficult. Now, my bike is still my favorite place to be in the world."

Not only was Becky’s diabetes story something inspirational but her life before diabetes also. 

Read more of Becky’s story here.

Presenter, Lingerie Designer and person with type 1 diabetes: Katie Isherwood

Katie was diagnosed at the age of 22 and was already on her final year of a fashion degree in London. Her intentions to work in the fashion industry and travel the world were clear to Katie’s doctor who advised her to rethink her plan. Thankfully, Katie knew better.

Katie’s involvement in an insulin pump group where people who are established on pumps share their experiences with people who are considering pumps made her realise that one of the most use reason for not trying a pump was the “where do I wear it” issue. And this led her to create better options to conceal, carry and access the pump on a daily basis were needed for all.

“I've never been embarrassed about my diabetes, or shy about discussing it, but I want to choose who I tell and when rather than it just being on show.” And that's how Hid-In Insulin Pumpwear was created. 

Closing Thoughts: Consultant in Diabetes & Endocrinology, Dr. Partha Kar

TADTalk is spearheaded by the Associate National Clinical Director, Diabetes with NHS England, Dr. Partha Kar who said that one of the reasons he is so involved in TadTalk is because he and his fellow clinicians learn so much from the day - the patients become the teachers.  

Dr Kar is also the co-creator of Type 1 Diabetes comic (“Origins”) while also involved in setting up a Type 1 Diabetes information portal (T1resources.uk). 

Dr Partha Kar has been a Consultant in Diabetes & Endocrinology at Portsmouth Hospitals NHS Trust since 2008. He is an avid user of social media such as twitter (@parthaskar) to engage with patients – and been recognised as a “Social media Pioneer” by HSJ in 2014.

Summary

The goal of the free event is to inspire people to think differently about diabetes, helping to remove barriers and harnessing innovation and new technologies.

And that it does! It brings people with diabetes from all over the UK… and Ireland and all ages. I couldn’t believe there were so many people of different ages. Most of whom know each other online from twitter (no not facebook) from the weekly tweetchats using the hashtag #GBDOC


TAD looks like being an annual event but be warned, registration usually books out by lunchtime of opening day. 

DISCLAIMER

I used my own money to cover all of my expenses to travel to TADTalk because I wanted to go.