Mid October, I went to the DiabetesSisters Weekend for Women conference Alexandria, Virginia. See disclaimer at the end. One of the outstanding presentations I attended was by Thriveabetes 2016 speaker, Gary Scheiner’s presentation on “Making use of the Glycaemic Index”. This should not be a surprise to anyone has read Gary’s book “Think Like a Pancreas”.
I will be honest here; when I heard the words “Glycaemic Index” I pretended I didn’t. And the reason is that several years ago, when it became a thing that was relevant to diabetes management, I tried to learn but I found it completely and utterly confusing. So I went to Gary’s talk as a skeptic.
BUT! As always Gary puts the information together well. See his blog posts here.
He started by saying that the glycemic index is the speed glucose enters the blood in the first two hours. It does not measure how fast foods enter the blood as glucose beyond that or how long it takes at all. A-ha! Ok so glycemic index is useful information for first two hours. I feel exonerated now.
This is hugely relevant to my diabetes management because I know that my rapid acting insulin peaks in approx 2 hours and that I might need additional insulin doses after that to cover the glucose released into my blood after the two hours.
The glycemic index is measured from 0 to 100. The closer to 100 a Food is, the higher its glycemic index is and the quicker the glucose hits your blood.
Here is a snapshot of the other things I learned;
A mixed meal, ie a meal with protein, carbohydrates and or fat gravitates towards the carb. Meaning your body will process that first, albeit slower than if it was just carbs. So I might need to take a post meal dose of insulin in addition to my pre-meal dose.
If you have a low GI food before your meal it will slow down the follow up starch in your meal. This is really good to know! Bring on the peanuts before the pasta or pizza 🙂
Larger portions take longer to digest. This isn’t new information to me but I suppose I always underestimate just how flippin’ long it takes.
Time since your last meal affects the glycemic index. If you are still processing your food from the last meal, it’s going to slow down glucose absorption even more.
Some additional pieces of information not related to glycemic index but valuable.
Don’t trust your CGM when you are recovering from a low. The lag time in full force.
Insulin on board pump feature doesn’t take into account the food on board. As mentioned in the previous paragraph, if you are still digesting food you may need to override the insulin on board recommendation.
Insulin resistance can happen if you have a meal with a lot of fat.
Protein to insulin formula = ½ The total of protein grams and treat as carbs.
Amylin/Symlin is a hormone that slows gastric emptying. People who don’t have insulin don’t have amylin either so stomachs process food quicker.
Victoza is a GLP-1 injectable medication and reduces glucagon secretion; slows down the absorption of food.
In summary, glycemic index important to people with diabetes because:
Satiety. Low glycemic index meals help you feel full for longer.
Helps with the Timing of insulin. For example, if you know a meal or snack is going to have a high glycemic index then you could take your insulin 15 – 20. Minutes beforehand to give it a head start.
Helps avoid post meal spikes
So, I’m glad that I learned all of this and I’m glad that I don’t have to waste any more of my time trying to figure it out because it makes more sense to me now. And It may help me to know the glycemic index of a Food I’ve never tried before so that I can figure how to deliver my insulin (pre-meal, at meal or extended Bolus).
Disclaimer: Diabetes Sisters paid for my conference registration and accommodation but also gave me a contribution towards my travel costs. All they asked for in return was that I would write a blog post about the conference which I had to do anyway because I learned so much that needs to be shared;-) And I wrote here about how I was selected.
Back in October, I had a steroid injection in my hip. And yes, it drove my glucose levels bananas! For those of you who may not be aware of it, steroids are one of the medications that truly mess up glucose numbers for lots and lots of people. The ultimate craziness only lasted two to three days but the residual crazy lingered a couple of weeks.
Here’s a little of the backstory behind why I got a steroid injection.
I have been complaining about my right hip for some time and I finally did something about it in September 2016. I went to my GP. He referred me to my physiotherapist and we did some “process of elimination” exercises. They didn’t work. So then I went for an MRI and was referred to a rheumatologist.
At least now, we think I know what is wrong with my hip! It would seem both my physiotherapist and my rheumatologist agree that I have bursitis. And my rheumatologist injected steroids to reduce the swelling. If you have diabetes and you have steroids that plays absolute havoc with blood glucose.
However, no one could tell me how many days, weeks, months the glucose madness would go on for and how severe it would be.
Here is my experience of what happened to my glucose levels.
Prior to my injection my diabetes management was going fairly well with just the usual ups and downs. I had the shot mid morning and my glucose levels didn’t feel the effect of the injection until after lunch. But after lunch my numbers remained in the high teens until the early hours of the next morning. On day two, I noticed that if I increase my mealtime insulin significantly more than usual it would keep them in check. However, if I forgot to make the increase then I struggled to bring my numbers back down for hours.
Then the effect of the steroid started to wane slowly over the next two weeks and I had the opposite problem: trying to keep my glucose levels above hypo level. I adjusted insulin doses slowly and only making one or two changes at a time to bring them back to my normal diabetes levels (?!?!).
I was grateful that not only was I aware that this would more than likely happen but that both my endocrinologist, rheumatologist and physiotherapist reminded me it would. I’m probably going to have another dose in January but now, at least, I have a good idea of what to expect.
Do you remember that really, really wet day we had last week? It seems like a distant memory now and I don’t think it had a name, like a storm name, but most of the country was flooded under a yellow weather warning.
When I got up that morning and look out the window I thought “Nope, I’m not walking, I don’t mind being wet and drippy but not that wet!” I was disappointed because most days I love my walk. It clears my head as I inhale clean fresh energy and exhale stress. I swing my arms vigorously and loosen up my neck and shoulders. I had missed my walk the day before due to a doctor’s appointment so I was doubly disappointed.
So, with my daily constitutional off the menu, I took my “no-walk” breakfast insulin dose, which tends to be twice what I take if I am walking and off I drove the kids to school.
However, as I was dropping the teen and preteen to school the rain wasn’t that bad. So,I changed my mind (GASP)…. but how can I avoid a hypo seeing as I’ve taking all this insulin without using calories to prevent the low glucose reaction that will surely follow?
I decided to turn my background/basal insulin down to zero for one hour on my insulin pump. Yes, it was going to take an hour to take effect but it was better than a severe hypo. At least it might soften the blow.
Now, if I was on injection pens there is no way I could have avoided preventing a low without glucose.
So was I successful? Weeelll, kind of. I did have a hypo. A doosy at 2.8mmols but it didn’t feel as bad as it was and I didn’t feel like I had to consume the entire kitchen just about a dozen small jellies.
Compared to most hypos this one rebounded quite quickly and not too high. However, I did spend most of the day with glucose levels that were more elevated than my usual.
And there you have it, diabetes the spontaneity killer and weather the diabetes havoc-er.
For the last three years, I have used the first fourteen days in November, to give a little insight into my life with diabetes and try to dispel some of the myths around the public perception of diabetes on my Facebook and Twitter profiles with my friends, family and followers.
Why the first fourteen days in November?
I do it for only 14 days because I’m only human and just can’t do it for the whole month.
But I also bring it to a close on World Diabetes Day, which is November 14th, if you didn’t already know (because of my blasting it in your face;-D). The reason World Diabetes Day is November 14 is because that is the birthday of one of the creators of my miracle drug Insulin, Frederick Banting.
I make my posts are public so that anyone who is moved can share them and maybe extend diabetes awareness outside of my bubble.
By the way, the symbol for World Diabetes Day is the blue circle in the photo below.
So, in case you missed it, here’s what I posted for those fourteen days.
Day 1 of Diabetes Awareness
– Why do I bang on and on about diabetes awareness?
Because it could happen to you!
Diabetes can happen to anyone.
I don’t want anyone to be diagnosed with diabetes but I also don’t want you to die from a missed diagnosis.
I would like if all of my nearest and dearest would know 2 things and share it with their nearest and dearest:
The risk factors for type 2 diabetes
Because many people don’t get diagnosed until they have developed a life altering diabetes complication that may have been prevented.
The symptoms of type 1 diabetes are the 4 T’s (Tired, Thirsty, Toilet, Thin)
It may prevent someone from ending up in ICU or even save someone’s life. Mine was.
You can read a more detailed post on why exactly I choose those two topics and who I target here.
Day 2 of Diabetes Awareness
– What is Diabetes?
Diabetes is when you have too much glucose in your blood because it can’t go where it’s suppose to.
– The food you eat is broken down into glucose or sometimes called sugar.
– The glucose is then absorbed into your blood.
– Then, it should move into each of your body’s cells and become the energy we need to live.
– Insulin is the key to opening the door to those cells and allowing the glucose to enter.
If insulin doesn’t work properly all the doors are locked or don’t always open when they should and the glucose is trapped in your blood.
Type 1 diabetes your body doesn’t make insulin, so the doors are locked.
Type 2 diabetes your body cannot properly use the insulin it produces and so the doors have faulty hinges.
If your body can’t get energy from the glucose it looks to the fat stores for energy and when this happens in large amounts it produces a toxin/poison called Ketones.
Too much ketones cause your organs to shut down.
There are more types of diabetes out there and you can find out more here.
Day 3 of Diabetes Awareness
– Who can get diabetes?
Anyone!!! Any age! Any lifestyle!
The most common diabetes in childhood is type 1 but that does NOT mean adults don’t get it too. In fact, 50% of all diagnosis of type 1 diabetes happen to people over the age of 30!!!
The most common diabetes in adults is type 2 but that doesn’t mean that children don’t get it too.
40% of people who are diagnosed with type 2 diabetes are fit and healthy.
Day 4 of Diabetes Awareness
– The diabetes jokes aren’t funny.
They’re insensitive and hurtful.
It’s not that we don’t have a sense of humour. We do! Seriously, We do!!!
We joke about pricks all the time… finger pricks.
We joke about getting high on Lucozade or Fanta.
Jokes about “”eating cake that gives you diabetes”” show that you have limited knowledge about diabetes.
So just don’t repeat the joke.
Day 5 of Diabetes Awareness
– Did you know that; ALL types of diabetes are bad!
There is not a “good kind” or a “bad kind”: all types of diabetes can make life unbearable and can kill you.
All types can cause diabetes complications.
Needles really are not the worst thing about diabetes.
Day 6 of Diabetes Awareness
– Did you know that; Managing diabetes is a lot harder than it looks or that some people would have you believe.
Taking care of my diabetes is a lot of work and it takes up a lot of space in my brain.
Balancing food, medication, activity, hormones, and all the other factors that influence glucose levels is not easy. I can only measure/control some of those factors some of the time which means no two days are going to be the same with diabetes.
And it makes me crazy when healthy foods have a crazy effect on my glucose levels!!!
It’s enough to drive me to cake:-)
Day 7 of Diabetes Awareness
– Did you know that; There are NO stereotypes for diabetes.
Adults get type 1 diabetes, not just children.
In fact 50% of all the type 1 diabetes diagnosis are OVER the age of 30 years.
Young, fit and healthy people get type 2 diabetes. In fact, 30% of people who are diagnosed with type 2 diabetes do not fit the stereotype. Know ALL the risk factors!
Day 8 of Diabetes Awareness
– Did you know that; Insulin has been available for almost 100 years and people STILL die from diabetes!
People with diabetes die because in some countries they can’t afford their medication. #Insulin4All. In some countries, children with type 1 diabetes don’t expect to become adults.
They die because a diagnosis has been missed and thought to be the flu.
They die because they haven’t been taught to manage their condition at all and develop life threatening complications.
They die from Dead in Bed syndrome.
They die because they have been ill and developed life threatening DKA while ill.
Insulin is not a cure, it’s a treatment that allows me to have a life. But it doesn’t beat having a working pancreas.
Day 9 of Diabetes Awareness
– Diabetes is not something that a person did to themselves.
There are a number of risk factors that play a bigger part than the lifestyle choices you make.
Yet, people with diabetes are made to feel that they are to blame. And that should not happen!
Day 10 of Diabetes Awareness
– If someone you know is diagnosed with diabetes, please offer them support not judgement.
Ask us what we need.
Don’t lecture or nag. It’s not helpful.
Don’t ask if our glucose numbers are good or bad. It is what it is.
Don’t focus on what we are not doing, instead see what we are.
Day 13 of Diabetes Awareness
– A lot of times I eat sweets/candy because I have to.
Not because I want to, or would like to. And a lot of times I hate that I have to!
Sometimes I hate food because the math I have to do to eat is mentally exhausting!
Last night, my glucose levels dropped and I knew I would have to eat something sweet. It’s happening a lot lately and I’m still trying to adjust my medication to avoid it. But as a result I am so sick of glucose tabs, skittles, jelly beans and jellies.
It was long after dinner and I was full. I hoped for a delayed rise in glucose from dinner. It didn’t happen. I had to eat the jellies even though my stomach just wanted to spew them back out.
Day 14 of Diabetes Awareness – IT’S HERE!!!!
Happy birthday Fred!
Today, November 14 is World Diabetes Day. #WorldDiabetesDay.
I have been posting some diabetes information for the last 14 days to spread more awareness about the symptoms, risk factors and living life with diabetes.
And Today I celebrate;
One of the men who is responsible for me being alive, Frederick Banting, whose birthday falls today.
Being alive. I celebrate the advances there have been in diabetes technology and care, even since my diagnosis 24 years ago.
And I remember why I will continue to advocate for better health services for all people with diabetes.
In 2016 there were over 500 amputations related to diabetes complications. This is not acceptable and can be prevented with more podiatrists.
50% of all vision loss in Ireland is due to complications of diabetes and the same with kidney disease.
My life is finally slowing down after a number of weeks of events, diabetes awareness “stuff” and children being off school for mid term break. I have so many blogs posts in my head and no time to write them. But soon…
In the meantime, while I was fast asleep, my husband had a moment of inspiration about living life with type 1 diabetes and what common human experience might come close to describing the type 1 diabetes experience? Yes, there are a lot of questions to ask about why I was asleep and he wasn’t but not for publishing online 😉
So here is a guest post from my hubby.
Gráinne was away at a conference recently, presenting the “patient experience” to a group of 100 almost entirely healthcare professionals. She came home the first evening very excited by not only how well her talk was received, but the general tone of the conference in general.
I’m sure she will fill in details about the conference in a separate post, but I wanted to write a quick blurb about something that struck me at 3am (don’t ask): how does anybody gain insight into the life of a person with type 1 diabetes in an effort to build empathy?
The intellectual approach of explaining all the things one does to manage type 1 is important but somehow inadequate. Living with (and sleeping next to) a person with diabetes (PWD) can give you some insights, and loving a PWD to the extent where you have some of the same fears and worries they do at a very emotional level yields a whole new level of insights.
But such experiences are hard-earned and not wholly practical. To start with, I’ll take issue with others sleeping next to my wife on anything other than an exceptional basis 🙂
What struck me is there is a very common human experience that might come close to describing the type 1 diabetes experience: parenthood. I may not have diabetes, but I live with somebody who does. And…I am a parent of two pretty amazing kids.
What can parenthood do to help build empathy for those living with type 1? Let me share a partial list:
1. Say goodbye to a reliable full night of uninterrupted sleep.
Even in her pre-CGM days, Gráinne would wake up in the middle of the night not feeling right. Her sugars could be high or they could be low, or she could just be coming down with something. Regardless she had to check her sugars and then decide how to react to the information.
I wouldn’t say it’s quite like having a newborn baby, but it’s pretty close to having a 6 month old baby who can’t reliably settle. But without the option of seeing if the baby will be able to settle herself…and without the possibility that the 6 month old baby will grow out of it.
2. There is no rulebook.
A new parent is often desperate for a manual on “how to be a good parent.” What you learn as a parent is that every child is unique and has their own set of needs. You just need to figure out what works best for the child in front of you at the time. And of course what works for a two year old is not what works for a twelve year old: the “rulebook” for parenting is forever changing.
Type 1 seems to work in much the same way. There are so many variables in life that what worked for you last week may not work for you this week. You just take on whatever challenges type 1 throws at you, and deal with them in the best way your sleep-deprived, hypo-affected brain can manage.
3. Frequent guilt.
We’ve all as parents done things that we regretted. Maybe it was giving a punishment that was in retrospect overly harsh. Or maybe we’re worried that we’re being too lenient, or not helping our child learn lessons the hard way because we’re spoon-feeding them the answers. Or maybe our child is struggling in school, or struggling socially, or trying really hard in a sport that they love but are lacking the skills to be really good at…and we feel somehow responsible for this and guilty that we’re failing them as parents.
If you have type 1, guilt about “not managing your diabetes” seems to be there. Always. That bit of extra chocolate you had because it looked nice? Unless you accounted for it perfectly (and see point 2: you probably didn’t account for it perfectly because there is no rulebook), you’re probably going to see the result of that “indiscretion” in your blood sugars. Not getting the HbA1c result you hoped for? More guilt and self-loathing.
4. Low-grade worry.
As parents, we often worry about our children’s future. Some of these things are those over which we have control (and feel guilty about doing “wrong”). Others are longer-term things over which we have no real control: is the planet going to be habitable by the time my grandchildren are born? And every so often, we think about our own mortality: what would happen to our children if Gráinne and I were to die unexpectedly?
These aren’t necessarily things that keep us as parents up at night (those are more the “guilt” topics!), but they are the things that can weigh on the mind of a person with type 1. Mortality is a much more real presence in the life of someone with type 1: the very medication that is needed to keep you alive can also kill you (or worse).
5. Lots of “outside” advice
New parents (and experienced parents!) are often awash in advice, both solicited and unsolicited. It is advice commonly wrapped in “you should” and “never” and “always”…very emotionally charged terms.
Have you ever talked to a mother who wants to breastfeed but wasn’t able to make it work for whatever reason? Feeding her baby with a bottle can bring on a whole world of emotions with that simple act of providing nourishment to her child, and that’s before the very “helpful” commentary from some well-meaning individual: “breast is best!”
The world of diabetes management is awash in advice, much of it from medical experts and some of it from crackpot experts who read an article about “how cinnamon can cure diabetes” or some other such thing. But much with parenting, what a PWD must do is learn to figure out what advice is helpful to them and use that, whilst figuring out how to deflect and ignore advice that does not.
There are more parallels between “parenting” and “managing type 1 diabetes,” but this has hopefully given a taster based on my perspectives as a “diabetes insider-but-outsider.”
There’s one thing, however, that is DRAMATICALLY DIFFERENT FROM BEING A PARENT. Parents do not have any sort of scorecard. I mean okay, if you have killed your child violently are severely neglecting them to the point their health is in danger, you’ve clearly failed as a parent…but beyond that parenting is pretty much a “pass” sort of proposition…our children grow up, leave the home, and succeed (or fail) largely on their own effort, merits and socioeconomic position.
But in the world of diabetes…there are all sorts of numbers. The most notable one has been mentioned here a few times: HbA1c, or the “time-weighted average blood sugar over the past three months.” Doctors have historically focused on this number which is about as useful for an individual as the Body Mass Index (which is to say: not terribly useful).
With the advent of CGM and FGM technologies, they’re now starting to focus on “time in range” which is arguably a better indicator of overall diabetes management and overall health, but it also somehow fails to account for the fact that there are just so many factors over which a PWD has no control.
That’s the thing: most PWD who are armed with the best of knowledge, tools, and medicines will struggle to achieve their target HbA1c or time in range.
Imagine if we were to devise a “parenting index” for each and every parent, as a value between 0 and 100, and we set it up in such a way that it’s pretty much impossible to get a 100, or even an 80. Why? Because your children have a mind of their own, you can’t control them 100% of the time, there are people other than you influencing their lives, and you’re human so will make mistakes.
But you as a parent know that “100” is the best possible score, and so you try really really hard to get 100…you’re trying to do everything the experts say you should be doing, you’re spending lots of money and time to achieve perfection and love your child like no parent has ever loved their child. But year in and year out, you struggle to get a score over 60. Your best ever score was a 77.
And now ask yourself: Are you a failure as a parent?
Two weeks ago, I went to the DiabetesSisters Weekend for Women conference Alexandria, Virginia. See disclaimer at the end.
One of the outstanding presentations I attended was Melissa Lee’s “Diabetes and Technology”. Melissa is a respected blogger @SweetlyVoiced, patient advocate, former acting CEO of the Diabetes Hands Foundation and tech editor of ASweetLife online magazine. Qualified – YEP!!
Some people might assume that the word “Technology” means the discussion would be around Apps, Smartphones and computers. But in reality, people with diabetes have been using “technology” since insulin was first discovered. I would consider the topic of Diabetes Technology to include every device we use from the humble BG meter, insulin pens all the way to the DIY closed loop.
I met Melissa In 2015, when I was a scholarship winner at the MasterLab DHF conference and she was their acting CEO. She was diagnosed with type 1 diabetes in 1990 at aged 10 and is well known as a diabetes device diva.
She started her presentation with the basic Finger Pricker. I never thought about it before but there is so much more out there now in terms of what a glucose meter can do. For instance;
GLUCOSE METERS (The Finger pricker ones)
We have meters that are Bluetooth capabilities, connected to apps, built in bolus calculators , maybe even synced to an insulin pump, as well as the strips housed in the meter. I was actually late for Melissa’s presentation as I was talking too much with my breakfast companion 🙂 and only came in at the end of this slide so I can’t say anymore about it.
However, In Ireland, we have lots of choices when it comes to meters;
Ascensia Contour, Glucomen, Abbott Freestyle, Lifescan OneTouch range, Roche Accu Chek range for starters. All have websites that you can google for more information.
Next up; CHOOSING YOUR THERAPY
What are our choices in how we treat our diabetes? If we didn’t consider accessibility it would be this;
The traditional injection pen is about to get a complete overhaul. We already have pens such as the NovoPen Echo and NovoPen 5 with memory function which has the ability to record hours since the last dose and amount of units. We also have caps that a fix to insulin pens to give you this information such as Insulcheck and Timesulin.
However, CONNECTED PENS will become a new standard in the not too distant future.
Companies such as Timesulin and Irish company Innovation Zed’s Insulcheck realized early on that the majority of the insulin dependent population uses pens and that there is a huge potential for innovation here.
In the next couple of years we are going to see Smart Insulin Pens which are connected to an electronic logbook app and will record the timing of insulin doses, how much and carb intake, etc. I really think this is going to make a difference in so many people’s lives.
I spotted some research funded by the Health Research Board that estimates that only 14% of adults with type 1 diabetes in Ireland are using an insulin pump. This is not surprising but it’s nice to have a number. At the moment there are two pump companies available here as per HSE Contracts.
MiniMed® Paradigm VEO
There are older models available but not widely.
In the UK there are also the Roche Accuchek and the Omnipod. In the US there are only three insulin pumps companies on the market; Medtronic, Omnipod and Tandem.
With the foreseeable closure of Animas UK and Ireland I would consider the Irish insulin pump market to be an open one.
GLUCOSE SENSING (CONTINUOUS AND FLASH)
Melissa shared that only 10% of type 1 diabetes population in US using a CGM. The Freestyle Libre just got FDA approval but it’s not on the market yet. I would estimate that this is much, much smaller in Ireland, even with the Libre.
Here’s what we seem to have in Ireland;
Pump with CGM
Guardian™ 2 Link transmitter is only compatible with MiniMed® 640G insulin pump
MiniLink™ transmitter is compatible with MiniMed Paradigm® Veo™ system and Guardian® REAL-Time CGM
Stand-alone CGM Guardian® REAL-Time CGM system
G5 with Clarity app,
both integrated with the Animas Vibe
Abbott FreeStyle Libre
not integrated with any pumps or pens…. Yet and no app integration yet.
Medtronic 670G sensor more accurate and reliable than their current
Roche CGM Senseonics Eversense
implantable in doctors office.
Transmitter worn over the sensor.
There are a tonne of apps out there for diabetes. You will find one that meets your needs but it will take time and effort. There are apps where you manually do all the logging and there are apps that are synced to your devices.
There are also Apps such as Tidepool and Glooko, where you can upload all your devices too – neither are synced to my knowledge but I’m still researching this. This is a useful blog post on Tidepool from Test, Guess and Go.
The most used app in the diabetes community seems to be MySugr and in Ireland, both the “Carbs and Cals” and the “MyFitnessPal” apps are used widely.
Ideally, I would like a one4all app that syncs all devices. Still looking.
DIY SYSTEMS closed loop
What is closed loop? We have insulin pumps where we manually tell it how much insulin to give us and we have CGM’s that tell us what our glucose levels are at at any time. Closed Loop is creating the missing piece that allows the CGM to talk to the Insulin pump and tell it what to do.
Diabetes companies are working really hard to package a complete Closed Loop System, however, a couple of talented people have already done it by hacking the devices and creating a computer programme which they have shared online. In effect, people are creating their own DIY Closed Loop Artificial Pancreas. #Wearenotwaiting
There are two Automated insulin delivery systems;
One of the benefits of automated DIY over smart pumps is that it gives you More control over your own perimeters.
Melissa has been using the Loop version for two years and showed us how the system changed her basal rates automatically 100 times the previous day. How can a human possible even try to do that manually????
I’ve been following Diabetogenic’s journey with The Loop to find out more.
The best thing about moving forward in diabetes tech is that so many companies are doing stuff here.
Tandem, Dexcom and TypeZero are working together on the integration of their technologies into the NIH-funded International Diabetes Closed Loop (IDCL) Trial.
Tandem is working on development of an insulin pump that integrates the data from a Dexcom G6 sensor and Type Zero’s inControl algorithm directly into the pump’s touchscreen interface.
Omnipod Dash coming to US in 2018 and integrates Bluetooth into the body-worn, tubeless pod, and use a transformed, locked down Android smartphone for functions currently performed on the personal diabetes manager (PDM) handheld device.
Omnipod Horizon Automated Glucose Control System (to automate insulin delivery with Dexcom CGM) is slated for a “late 2019” launch.
Beta bionics plans to launch it’s iLet artificial pancreas in 2019 but just insulin only followed soon after by dual hormone (insulin + glucagon) version.
Bigfoot Biomedical automatic basal adjustments system completed clinical trials last year and is launching the next phase clinical trial in 2018.
In a nutshell, there is A LOT to watch!!! This makes me happy because there is a lot of research happening in this industry and a lot of investment.
Disclaimer: Diabetes Sisters paid for my conference registration and accommodation but also gave me a contribution towards my travel costs. All they asked for in return was that I would write a blog post about the conference which I had to do anyway because I learned so much that needs to be shared;-)
Disclaimer:Diabetes Sisters paid for my conference registration and accommodation but also gave me a contribution towards my travel costs. All they asked for in return was that I would write a blog post about the conference which I had to do anyway because I learned so much that needs to be shared;-)
There’s nothing like a diabetes conference! Seriously, diabetes conferences are like walking into a warm hug. A zone in which being a pwd is normal and your diabetes jokes get laughed at. It’s the, nobody bats an eye when there beeps sound off in the room because everybody knows what the beep is and no explanations or apologies are expected/offered/needed.
We speak the same language. You are surrounded by so many people with diabetes, there is so very much to talk about and for me, it’s very, very, very difficult to leave when the conference ends. But then once I’m home with my family it’s all good again.
How did I end up there?
Well a couple of months ago I saw that The diabetes sisters organization was offering scholarships to attend. I also knew that this was a joint conference with the Diabetes Collective DUnconfernce. I have been following both of these events/organizations since they began. I applied! I really wanted to go! I’d figure out the rest later (Shawn Sheppard 🙂
Then, a month later I bought tickets for a show at home that I was dying to see for that very weekend. Either way I was going to have fun that weekend! I won the scholarship and found a new home for the tickets to a sold out show.
The idea of traveling across an ocean just to spend a weekend with people with diabetes might seem a lot crazy to some but when you know for certain that you will come away with so much more in your brain and heart it’s not.
It’s always a good sign when you register for a conference the first person you met you know. Then I met my roommate who googled how to pronounce my name :-O The loveliest room mate ever.
What was it like?
Exactly as described in my opening paragraph. Good for the heart, good for the head and good for the soul. The speakers are all people who are doing amazing things, not all had diabetes and not all were health care professionals. The information and the sharing of experiences in the room was so valuable. I will write more posts about what I learned in some of sessions in the following weeks.
Last week, Johnson & Johnson Diabetes, who own Animas, announced that it was “exiting” out of the insulin pump business, effective immediately in the US and Canada. And eventually in the rest of the world.
Once I read all the way down the press release to realise that it was just USA and Canada for now, I was relieved.
Then I was seriously miffed, but not completely surprised. Since the Vibe insulin pump was introduced, a number of years ago, innovation seemed to have stalled within the company. Johnson & Johnson own both Animas and the glucose meter company LifeScan/OneTouch but they didn’t even innovate between these products, not even to do what all others were doing and that was to sync products via Bluetooth or whatever internet cloud magic they choose. One might even say they really checked out of the diabetes industry a long time ago by their lack of interest.
So, what does this mean for us in Ireland? And what does this mean for me an Animas Pump user?
I have been using an Animas pump since my pumping beginnings in 2010. Then in 2014, I upgraded to the Vibe and in 2015 I added the Dexcom Continuous Glucose Monitoring System (CGM) to it. I didn’t choose which insulin pump I would have, it was chosen for me, but I didn’t have any complaints. In fact, it’s been a great relationship!
Now I’m trying to think ahead and I realised that in the not too distant future I’m going to have to find a replacement for my insulin pump.
What are my choices in pumps? Do I actually have a choice, when the only other insulin pump my health service has a contract with is Medtronic? Yes it’s probably a good pump but I don’t want to be forced into it.
BUT it’s not just my pump I need to consider!
This also effects my CGM device. How will my new pump interact with my current CGM, if at all? My Dexcom receiver IS my insulin pump, meaning that my glucose sensor transmits the information straight to my pump. So I need to either get a new receiver device or change CGM’s.
And then, there’s my glucose meter which I was also able to upload to my insulin pump software programme which allows me to create useful graphs that help me make better decisions about my daily care. All of my information, from all of my devices is uploaded to the same place where I can see it all and it was easy!
Will I need to change both of these devices to make life easier?
What will the overall software platform be that I use?
I want to be able to upload/Bluetooth/cloud sync all my devices to the same place!
I want to use whatever d*** device I like best. And I really don’t like that I have to research all of this when managing diabetes is enough work already.
Every year, around this time, I have a conversation with myself about whether or not I should get the flu vaccine. And every year I make a different decision. Two signs of insanity right there; talking to myself and complete indecision. Whose worried? Not me! Oops, there I go again, talking to myself. 😆
Should everyone with diabetes get the flu vaccines? Well that is completely totally up to you.
So far, I’ve only gotten it once and that was the winter I was pregnant with my now 13 year old daughter. Since then, I maintained that if it’s not broke don’t fix it and I never get flu so I didn’t bother.
Except last year, I had clocked up one or two flus that knocked me out for a week at a time, I decided that I was going to get it. However, when I went to my GP, I already had a cold and decided to wait but then never got around to it. I’m not sick very often so I figure the odds are still on my side. I do know as I approach 65 I will decide that I’m better off vaccinated.
This year I’m still undecided but maybe swaying towards the “I will” side.
If you are like me and still thinking will I, won’t I, here’s some additional information for about it
IS THE FLU VACCINE FREE FOR PEOPLE WITH DIABETES?
“Yes” and “No” because nothing is ever straight forward in our health system.
Yes, the flu vaccine itself is free to everyone in the “At Risk” groups which includes people with diabetes.
No, because if you do not have a medical card, a GP services card or a HAA card, you will have to pay for someone to jab it in.
A lot of pharmacy chains offer the flu vaccine so you do have the option to walk into one of those and have it done there and then without making an appointment. Next time you are collecting your diabetes supplies you can ask.
It’s also worth mentioning that the HSE have also launched a Pneumococcal Vaccine campaign which shouldn’t be confused with the Flu vaccine. I would like to thank our guest speaker, Paul, from our last diabetes support group meeting for clarifying this information for us.
WHAT IS THE Pneumococcal Vaccine?
“Pneumococcal disease is an umbrella term for a range of illnesses caused by a type of bacteria called Streptococcus pneumoniae (also known as the pneumo bug). It is a major cause of serious infection that can lead to death, particularly amongst the elderly, the very young, those who have an absent or non-functioning spleen, those with long term medical conditions*, or those with weakened immunity.”
However, the pneumococcal vaccination is USUALLY A SINGLE VACCINATION (ie once in your lifetime dose) for those at-risk. The most at risk group are children under age 2 years and adults over 65. Once you get it once you should be protected for the rest of your life. There are exceptions to this guideline so if you would like to know more ask your GP or visit http://pneumo.ie/
The general consensus around the availability of continuous glucose monitoring (CGM) systems in Ireland among patients and health professionals is that they are only for the select few. And while this may be somewhat true I believe that this conversation will change very soon.
By the way, do not be put off by what I just said about them not being available right now; if a CGM is something you feel would make a difference in your diabetes management then go for it! Here‘s a post I did soon after I got mine on how I got it.
** Another by the way I would like to mention is that nobody pays me, in any way, to say what I say in my blog posts. All opinions are completely my own.
Why do I think that the conversation around CGM’s is changing?
Well three reasons and I’m starting with the most powerful but least heard reason;
1.The conversation is changing because of our (people with diabetes) voices!
More people with diabetes are using CGM’s. Not many more. But more! More people with diabetes know that such devices exist. More newly diagnosed people with diabetes are hearing about it sooner and from outside the healthcare environment. More people with diabetes are talking to each other about the benefits they find using a CGM. And we are bringing all of that information back to our health care providers where they will get tired of saying “no”.
2. The conversation is changing because of the Abbott Freestyle Libre!
Since the Libre Flash glucose monitor came onto the scene, even more people with diabetes have access to their 24-hour glucose profile and a lot more front line health care professionals are seeing the benefits to their patients in having this information. Up until the launch of the Libre, only a few of us could share how much having a 24-hour glucose profile helped us manage our diabetes better. I feel we were considered exceptional patients but the reality is that we were just making better informed decisions. With more and more people having access to 24-hour glucose profile, be it via a CGM or the Libre, the exception is now becoming the rule. 😉
3. The conversation is changing because of new research from the medical community!
Our health care providers are starting to listen to us. There are many, many more clinical trials proving that CGM improves our lives with diabetes and there are more clinical trials and studies are using CGM’s to get a more complete picture of their results.
All the voices in favour of the benefits or CGM are growing louder and louder and coming from more than just the patient community. They cannot be ignored for very much longer. The governments of the world will see it as wise to invest in cgms and save on treating diabetes complications later. And we, the people living with diabetes, are driving that conversation. 🙂
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