I have been actively volunteering with Diabetes Ireland on this issue, as others have, in particular Liz Murphy from Waterford and Davina Lyon, Offaly, and believe that the Freestyle Libre glucose monitor should be available, without age restriction, to people with diabetes in Ireland and here is some information on how the Libre4All campaign is progressing.
The Latest Information
4th October 2019: Diabetes Ireland announced that following a plethora of parliamentary questions from TDs, that the HSE has clarified that the following will be included in that review;
Clinical data from Irish settings acknowledging that has a bearing on cost effectiveness
Review of strip usage at an individual level for persons approved for Freestyle LIBRE
Reasons for exceptional approvals
Overall review of the quantitative data
Diabetes Ireland Survey on the use of the freestyle LIBRE
“This response also provided, for the first time, detailed costing’s incurred by the HSE. To date, there are 2,798 people currently using Freestyle LIBRE at a cost to be in the region of €1.8 million. Many of these may not be using the Libre for a full 12 months so while it would not be accurate to calculate a per patient cost from this data, it does show that .....👉🏻👉🏻👉🏻.....the cost of Freestyle Libre WILL NOT EXCEED THE ANTICIPATED BUDGETARY SPEND as set out in the Advice Note 2017/01 which is positive for the review.” 👈🏻👈🏻👈🏻
See the full statement here.
15th August 2019: HSE are currently reviewing and considering removing the age restriction on the Freestyle Libre Reimbursement scheme and considering the experience of patients and “societal aspects of benefit” presented in Diabetes Ireland’s User Survey. As per Irish Times Article.
Between 25th June - 9th July 2019: 32 written Parliamentary Questions asked by our public representatives calling on the Minister for Health, Simon Harris, to ensure that the findings from the Freestyle Libre User Survey be included as part of the HSE’s review of the reimbursement scheme.
18th June 2019: Press Release and Call to Action from Diabetes Ireland: Diabetes Community Calls on Minister for Health to Extend Freestyle Libre to all people with type 1 diabetes. Survey Highlights Huge Quality of Life Improvements in Irish Users of Technology
Call to Action for People to contact their local TDs asking the “Minister for Health to ensure survey findings are considered as part of the HSE Review and consider the views of people self-funding its use when making his final decision on this issue.
The survey showed significant reduction in blood glucose strip usage, which provides cost savings for the HSE and offsets the monthly cost of the Libre sensors and positive information on individual daily experiences and life changing benefits of using Libre. These were issues identified in the HSE’s Health Technology Assessment Group Advice Note 2017/001 for not making the technology available to all people with Type 1 diabetes based on clinical need.”
The Flash Glucose Monitor, the Freestyle Libre made by Abbott, was launched in Ireland for purchase in November 2016. The sensors for this monitor cost €120 per month which is not affordable for many people living with diabetes.
On 3 February 2017, Abbott submitted an application to the HSE's Primary Care Reimbursement Scheme for inclusion on the Long Term Illness Scheme so that it would be available to all who need it.
2017 June 28 Update on the Libre’s application with the HSE for inclusion on the Long Term Illness Scheme
2018 January 24 My reaction to the HSE's announcement of the Freestyle Libre Reimbursement Scheme
2018 February 12 What’s Next in the Freestyle Libre Campaign?
2018 March 13 Libre4All Campaign Update
2018 March 30 Morning Ireland Interview with Anna Clarke, Diabetes Ireland and Campaigner Liz Murphy
2018 April 16 The Freestyle Libre; why we need it
2018 April 18 LMFM interview on The Michael Reade Show (Scroll to 1:09:40 to hear interview)
2018 April 19 Midlands Radio3 Interview with Will Faulkner
2018 April 18 Freestyle Libre Petition Presented to Government
2018 June 25 Scroll down to “THE MOST IMPORTANT CONVERSATIONS HAPPEN AFTERWARDS - A FreeStyle Libre UPDATE” of this post.
2019 March 5 - Diabetes Ireland shared an online survey
2019 May 13 - Diabetes Ireland announcement
Watch this Space!