Blood Sugar Trampoline

What is Diabetes

Chances are that if you found my website you already know a little something about diabetes. But, you might be like me and always want to learn more. And there’s ALWAYS is more to learn about diabetes. In this page/post I will attempt to give you my interpretation of diabetes. But I will also refer to medical people who can get more technical. I will also talk about the symptoms of diabetes, the risk factors and different types of diabetes.

Diabetes is not easy to explain and it usually requires more than a short sentence, which means people’s eyes glaze over and you lose them before you get to the “good” stuff. But you still have to try right.

It’s important for all of us, people with diabetes, to not only explain our type correctly but when we are asked about other types that we support those people well too.

Let’s start with the basics. Most of the medical definitions I’ve used here came from the Canadian Diabetes Association’s website.diabetes What is-1270346

Diabetes is;

Diabetes is a lifelong, chronic, and sometimes fatal disease about the struggle to manage glucose levels in your bloodstream. The body either cannot produce insulin or cannot properly use the insulin it produces.

What do we need insulin?

Insulin is a hormone that turns the glucose (sugar) in our blood into energy for all of our cells to function. The glucose comes from a couple of sources, mostly from foods known as carbohydrates and a stored supply in our liver. Diabetes leads to high blood sugar levels, which can damage organs, blood vessels and nerves – every where our blood goes means that’s an area excess sugar can damage. – See more here.

There are a bunch of different types of diabetes.

Type 1 Diabetes

My (non scientific, non-medical) description; Type 1 diabetes happens when, for some unknown reason, our immune system goes “terminator” on our insulin making cells and wipes them all out. My body now has no way to convert the food I eat, in particular the good stuff that comes in the form of carbohydrates, into fuel for my body to exist. Or the glucose that is constantly being released from my liver to keep energy levels up in between meals.

About five to 10% of people with diabetes have type 1 diabetes and it can happen at any age. Type 1 diabetes generally develops in childhood or adolescence, but can develop in adulthood. And type 1 diabetes is always treated with insulin.”

For the more medical explanation of type 1 diabetes click here. “The risk factors for type 1 diabetes are still being researched. However, having a family member with type 1 diabetes slightly increases the risk of developing the disease. Environmental factors and exposure to some viral infections have also been linked to the risk of developing type 1 diabetes.” Source – International Diabetes Federation (IDF)

Symptoms of Type 1 Diabetes:

The symptoms of type 1 diabetes can develop very quickly (over a few days or weeks), particularly in children.

The main symptoms of type 1 diabetes are the 4T’s :

  • Excessive  Thirst
  • Excessive trips to the Toilet
  • Excessive Tiredness
  • Thin; losing an excessive amount of weight

Other symptoms can be vomiting or heavy, deep breathing can also occur at a later stage. This is a dangerous sign and requires immediate admission to hospital for treatment. For more information on the symptoms of type 1 diabetes, click here.

LADA (latent autoimmune diabetes in adults) or Type 1.5

My (non scientific, non-medical) description; LADA is very much like type 1 diabetes but it tends to occur in older adults. It is very often mistaken for type 2 diabetes. It’s a slower destruction of the insulin making cells. Maybe it’s something to do with the “Terminator” being older and slower moving!?! So the symptoms present over a longer period than they would for a person with type 1 diabetes.

LADA is also known as slow-onset type 1 diabetes and type 1.5 diabetes. Like other forms of type 1 diabetes, people with LADA require insulin injections to normalise their blood glucose levels.

For the more medical explanation of LADA click hereSymptoms are very similar to those of type 1 diabetes.

Type 2 Diabetes

My (non scientific, non-medical) description; Type 2 diabetes happens when your insulin has developed a dementia. It’s old and tired and not quite sure what it’s suppose to do. So, sometimes it works and sometimes it has to put twice as much effort in to work. To me, it’s like the insulin has dementia – sometimes it’s sharp and works well and other times it just can’t figure out what to do.

In general, people who develop type 2 diabetes are older but this isn’t always the case. it’s the most common type of diabetes.

The treatment options for type 2 diabetes include managing physical activity and meal planning, or may also require medications and/or insulin to control blood sugar more effectively. It can be a series of trial and error to find the right treatment plan for a person with type 2 diabetes.

For the more medical explanation of type 2 diabetes click here.

Symptoms of Type 2 Diabetes:

The symptoms of type 2 diabetes can be very slow to present and often you can have type 2 diabetes for a number of years before it is picked up.

The most common symptoms of type 2 diabetes include:

  • excessive thirst
  • frequent or increased urination, especially at night
  • excessive hunger
  • fatigue
  • blurry vision
  • sores or cuts that won’t heal

Risk Factors for Type 2 Diabetes (from IDF):

There are 10, that’s TEN risk factors for type 2 diabetes. Not just the two/three that we ALWAYS hear about.

  • Family history of diabetes
  • Increasing age
  • High blood pressure
  • Ethnicity
  • Impaired glucose tolerance (IGT)*
  • Overweight
  • Unhealthy diet
  • Physical inactivity
  • History of gestational diabetes
  • Poor nutrition during pregnancy

Impaired glucose tolerance (IGT) is a category of higher than normal blood glucose, but below the threshold for diagnosing diabetes.

Gestational Diabetes

The other description from IDFis a form of diabetes consisting of high blood glucose levels during pregnancy. It develops in one in 25 pregnancies worldwide and is associated with complications to both mother and baby. GDM usually disappears after pregnancy but women with GDM and their children are at an increased risk of developing type 2 diabetes later in life.

Approximately half of women with a history of GDM go on to develop type 2 diabetes within five to ten years after delivery.

Other Types.

There are other, much rarer forms of diabetes that are monogenic, meaning a change in only one gene is responsible for the condition. There are two types of conditions in this category: Maturity Onset Diabetes of the Young  (MODY) and Neonatal Diabetes Mellitus (NDM).

For these types of diabetes I have to call on the words of experts because I’m not very familiar with them and don’t feel comfortable giving a description of something I don’t know much about.

MODY Maturity Onset Diabetes of the Young

I would love to take credit for this explanation of MODY but I couldn’t do any better than Morag (Twitter: @SparklyRedShoes) on GBDOC MODY happens when there is a mutation of a gene and is most often hereditary. It very often is confused as type 2 diabetes in a young person.

“MODY is diagnosed by genetic testing. It may be worth testing for MODY when a person with diabetes doesn’t fit the profile of the more usual types. For example, somebody who actually has MODY may not require as much insulin as most people with Type 1 (and will have measurable C-peptide), even long after the honeymoon period, but they will generally not be of the age and weight you might expect to see for Type 2. In fact, at diagnosis, people with MODY are often young, slim and active. ”

Being genetic, it runs strongly in families; if one parent has it, then the chances of a child inheriting the gene are 50/50. People with a MODY gene generally develop diabetes as young adults, and most are diagnosed by age 45.

For the more medical explanation of type 2 diabetes click here.

The key features of MODY are;

  • Being diagnosed with diabetes under the age of 25.
  • Having a parent with diabetes, with diabetes in two or more generations.
  • Not necessarily needing insulin.

NDM Neonatal Diabetes Mellitus

baby1-499976_1920From Diabetes UK; Neonatal diabetes is a form of diabetes that is diagnosed under the age of nine months. It’s a different type of diabetes than the more common Type 1 diabetes as it’s not an autoimmune condition (where the body has destroyed its insulin producing cells). Like MODY it’s a genetic mutation.

 The key features of neonatal diabetes are:

  • Neonatal diabetes is caused by a change in a gene which affects insulin production. This means that levels of blood glucose (sugar) in the body rise very high.
  • The main feature of neonatal diabetes is being diagnosed with diabetes under the age of 6 months, and this is where it’s different from Type 1, as Type 1 doesn’t affect anyone under 6 months.
  • As well as this, about 20 per cent of people with neonatal diabetes also have some developmental delay (eg muscle weakness, learning difficulties) and epilepsy.
  • Neonatal diabetes is very rare, currently there are less than 100 people diagnosed with it in the UK.
  • There are two types of neonatal diabetes – transient and permanent. As the name suggests, transient neonatal diabetes doesn’t last forever and usually resolves before the age of 12 months. But it usually recurs later on in life, generally during the teenage years.  It accounts for 50-60 per cent of all cases. Permanent neonatal diabetes as you might expect, lasts forever and accounts for 40-50 per cent of all cases.
  • Around 50 % of people with neonatal diabetes don’t need insulin and can be treated with a tablet called Glibenclamide instead. These people have a change in the KCNJ11 or ABCC8 gene and need higher doses of Glibenclamide than would be used to treat type 2 diabetes. As well as controlling blood glucose levels, Glibenclamide can also improve the symptoms of developmental delay. It’s important to know if you have/your child has neonatal diabetes to make sure you’re/they’re getting the right treatment and advice (eg stopping insulin).
  • Genetic testing for neonatal diabetes is offered free of charge for all people diagnosed with diabetes before 9 months of age. Confirming the diagnosis by molecular genetic testing is essential before considering any change to treatment.
  • More information about neonatal diabetes can be found here.

So if you were/your child was diagnosed with diabetes before you/they were 6 months old, ask your diabetes team for a test for neonatal diabetes. Your team can take a blood sample and send it to the Peninsula Medical School based at the Royal Devon and Exeter Hospital for analysis. The test is free. Go to www.diabetesgenes.org. This site will also tell your doctor how to take your blood and send it to the team at Exeter.

How I got a CGM

The end of May marked six months since I got CGM’d. WOW! It just flew by. 

Bouncing on the Blood Sugar Trampoline

After two years of persistence, I finally got my CGM on November 27th 2015. When I announced this on social media I has a number of queries about how I managed to get approved and how difficult others were finding their quest.

As always, the one thing that the diabetes community is brilliant at, is sharing knowledge through our personal experiences for the benefit of others. So, here is the story of how I came to have a CGM.

How did this quest begin? Well, it began with an insulin pump (and that was another long drawn out “quest”) in June 2010. I wrote about that journey here on 29th March 2011.

I use the Animas Insulin Pump and as soon as Animas announced that they were rolling out the Animas Vibe with CGM integration in the UK and Ireland, I was on it like sticky on a toddler.

My pump was due for an upgrade in 2014 as the warranty runs out at 4 years and because the pump software would not continue past January 2016. I called my Animas rep to find out how, or if there was a chance that I would get a Vibe as part of this upgrade and she said yes! Great! But wait!

Hiccup no. 1. However, between hearing this information and my next appointment at my endo’s office, my Animas rep, the only Animas employee in Ireland at that time,  took a 12 month sabbatical. That combined with having only 3 visits per year to my endo doesn’t give me much of a chance to get things done. I did get my Vibe in June 2014 and immediately started chasing down how to get the CGM component.

Hiccup no. 2. My Animas rep returned from her sabbatical the following August BUT then my fabulous endocrinologist left her position at the hospital I attend! I decided to use this opportunity to migrate back into public health care for my diabetes. My children were both in primary school and it was doable to fit clinic visits during school hours. I had also heard of a clinic that was only a one hour drive away that had an insulin pump clinic and DAFNE

CGM 9.1

Hiccup no. 3. Fifteen month waiting list!!!!!!!!!!!!!!!! Not kidding! By the time I got my referral sorted out to my new clinic and waited I had been without medical care for 11 months. I was doing fine but I was starting to get a wee bit unsettled. Thankfully, when I called to chase up my referral they squeezed me into the Type 2 diabetes clinic in April 2015 but at least I was in and on the books.

June 2015 – I set up a trial before purchase with a Dexcom CGM for two weeks and I was hooked. And now I had data, with the help of my mathematical husband, to strengthen my case for getting one permanently.

October 2015 – I presented my case and there were a couple of breakdowns in communication but the paperwork was put through to apply for funding approval from the HSE and on the 27th November I was live on a CGM permanently.

It took 17 months to complete this quest, that in the end when I had convinced my diabetes team why I wanted one took 6 weeks. Unlike an insulin pump, the training and education required before a patient goes live on a CGM is minimum. 

In February 2016, an additional piece of this quest was completed and that was the reimbursement of the monthly supply of sensors which comes not from the Core List F of diabetes supplies and medications included in the Long Term Illness Scheme but on the Special Product List. See here for more information.

And that is the complicated story of how I got a CGM. My next post will focus on what I have learn about managing my diabetes by using it and how I will be taking it to the grave with me.

If you want to find out more about what is a CGM (Continuous Glucose Monitoring) device is, watch here. There are two available in Ireland at the moment; the aforementioned Dexcom (with or without the Vibe insulin pump) and the Medtronic RealTime Guardian CGM. The newer Medtronic pumps all come with CGM compatibility but you can get the CGM component without getting an insulin pump.

Being “Diabetic”

I am very privileged to know lots of people in the diabetes community. I also know a lot of people who aren’t particularly bothered about being called “Diabetic”. I respect their choice on that.

However, I am not one of those people. I may have been once when I felt so uncomfortable talking about my diabetes that I felt it was easier and quicker to say “I’m diabetic” rather than say “I have diabetes”.

These days though, the harsh sound of the ‘ic” at the end of the word makes me cringe. It’s like hearing nails scrape across a chalkboard. But I feel the soft “es” at the end of the word diabetes lessens the punch in the guts for me.

The very famous and very talented Kerri Sparling uses the tagline of “Diabetes doesn’t define me but it helps explain me” on her blog Sixuntilme.

I am a wife, mother, daughter, sister, former graphic designer, former payroll clerk, I’m Irish… etc. These are all things that define who I am.

I’m not going to give that kind of power to my diabetes.

I have blue eyes, fair sometimes blonde hair, fair skin, lots of freckles and I have type 1 diabetes. These are things that describe me and they are not all that important. What difference does it make if I have blue or purple eyes. Not much.

So for those who know me, I’m not a diabetic. I have diabetes. And for those who don’t know me I ask that when you are talking to people with diabetes or about people with diabetes, please be aware that some don’t like it. Thanks and appreciate it:-)

Here’s what the American Diabetes Association has to say on the use of this term;

There’s a reason the American Diabetes Association, Diabetes Forecast, and most scientific journals avoid using the term “diabetic” as a noun: People with the disease are diverse individuals, not a single entity. Some people identify themselves as “diabetics” and find that the term provides a useful narrative framework in which they manage the realities of living with the condition. But not everyone feels that way.

Many people with diabetes see the term as stigmatizing. They advocate that the language used to describe the condition and the person living with the condition be carefully distinguished. Another reason “diabetic” should be scrapped? Defining a group of individuals with a similar disease by their condition may prevent others, including family members and health care providers, from thinking about their experiences and needs as individuals.

Ketone – Scary or Not Scary?

**** I am not a health care professional nor do I have anything that looks remotely like a medical degree. So take anything I say with a pinch of salt.

For this piece I have combined information I found on;  Diabetes Daily written By Ginger Vieira on January 4th, 2016, from Beyond Type 1 WRITTEN BY: Kyla Schmieg, BSN, RN and from The Type 1 Diabetes Network Australia Type 1 Diabetes Starter Kit

When I was diagnosed in 1993, I don’t remember hearing the word ketone back then. In fact, I don’t think I hear it until the early 2,000’s. Remember, diabetes education didn’t exist in Ireland before then – not to my recollection anyway.

In my 23 years with type 1 diabetes I have never tested for ketones. Firstly I don’t often get sick. And secondly, when I’m sick I take all the recommended actions that deal with both being sick and flushing out ketones.

Ketone StixHowever, I hear a lot of talk about ketones and began to think that, maybe, I’m a bit too relaxed about them and need to know a bit more.

So, first, what is a ketone?

When our body can’t access glucose, it looks to burn fat for energy. Burning fat results in ketones.   

“Ketones build up can lead to Diabetic Ketoacidosis (DKA). Signs of DKA include nausea, vomiting, abdominal pain, fruity or acetone (think nail polish remover) breath, rapid breathing, flushed skin, and lack of energy.“ http://beyondtype1.org/ketones-the-6-must-knows/

Why are they so scary?

Ketones usually build up in a person with diabetes if they do not have enough insulin taken and can be fatal.

If ketones happen “too much too fast, it is not natural and it’s important to understand that ‘normally’ produced ketones are very different from ketones that develop due to insulin deficiency.

Moderate or large amounts of ketones in your body are very dangerous. They upset the chemical balance of the blood and lead to a condition called diabetic ketoacidosis or DKA. Some people also experience fast and heavy breathing and exaggerated beating of their heart. It is scary! If you experience DKA, you need to go to hospital to be rehydrated and monitored while the ketones in your body reduce to a safe level.

Many people with type 1 diabetes have never had an episode of ketoacidosis, but you may have already experienced DKA during diagnosis. Unfortunately, DKA is life threatening, so you need to understand what it is and what to look out for.” (from the Type 1 Diabetes Network’s Starter Kit page 37)

OK, I’ve got it so far.

This much is easy to follow but when I started hearing about the different type of ketones that were I got a bit lost. Especially when I heard that you can have ketone when you are not sick and have normal blood sugar levels. Until I did this research, I didn’t know if that was a “freak-out” or “not-to-freaky-out” situation.

Different types of ketones.

Illness-Induced Ketones

Illness-induced ketones can be very dangerous for a person with any type of diabetes. People with diabetes who are sick, especially with an infection, a stomach bug, or the flu should always test their ketones while they are sick.

A mild illness can cause low level ketones that are usually not life-threatening or severely serious. If ketones are at low levels, the general suggestion is to consume plenty of fluids and talk to your healthcare team about increasing your background insulin doses.

Even if your blood sugars appear in-range but you are producing ketones when sick, an increase in background insulin can help eliminate the ketones without dropping one’s blood sugar.

On the other hand, a person with diabetes, who is vomiting repeatedly will almost always need to get to the ER as quickly as possible. Vomiting, no matter the cause of the vomiting, will likely induce large ketones and can be life-threatening. Vomiting leads to severe dehydration which will escalate ketones further to a state of DKA.

Since severe ketosis will likely make a person extremely nauseas in addition to their illness-induced nausea, it can be nearly impossible to consume enough fluids at home to re-hydrate the body. An IV drip of saline at the hospital is essential to rehydrating the body, reducing or eliminating ketones, and stabilizing blood sugar levels.

Consult your healthcare team if you have concerns about your state of ketosis.

Starvation Ketones

Starvation ketones are simply the result of not eating enough food over the course of several hours. Both diabetics and non-diabetics can easily produce very low levels of ketones overnight, seeing a faint pink color on a urine ketone strip first thing in the morning. These are not dangerous unless, of course, this person continues to starve themselves.

Nutritional Ketones

Nutritional Ketosis is a state where the body is using ketones as a fuel source efficiently and safely. In individuals without diabetes or in those with controlled diabetes, having insulin on board to maintain healthy blood sugar levels keeps ketone production in the safe range.

This is achieved by reducing carbohydrate-intake to below 50 grams, because when glucose from food is limited, but blood sugars are still in a healthy range and enough insulin is present, the body will begin to burn body fat for fuel instead, producing low levels of ketones in the bloodstream.”

As long as blood sugars are maintained in the normal safe range with insulin, someone with diabetes can very safely be in Nutritional Ketosis.

When you’ve been in Nutritional Ketosis and not even known it:

  • when you skip breakfast and don’t eat until lunch or later, your body is burning body fat for fuel and likely producing low-levels of ketones
  • when babies are born, they are often in a state of nutritional ketosis for the first few days or week of life because they are consuming very little breast milk until the mother’s breast milk production ramps up
  • when you eat a low-carb meal (eggs and bacon) for breakfast and don’t eat again until late lunch or afternoon…or…when you eat a low-carb breakfast followed by a low-carb lunch, your body is producing a low level of ketones until you eat a more significant serving of carbohydrates at dinner, etc.

Can you get ketones with a high blood sugar?

Ketones typically accompany high blood sugar. Ketones indicate your body needs more insulin. Most often if your body needs more insulin, it means your probably have a high blood sugar. Also, when an illness is present, your body releases hormones in response to the stress. These hormones lead to elevated blood glucose. That is why it’s recommended to test ketone levels during illness.

Can you get ketones with a normal or low blood sugar?

Ketones can also be present when your blood sugar is normal or low. These are sometimes referred to as “starvation ketones” or “nutritional ketosis.” During an illness or extreme diet change, if you have a significant decrease in carb intake, this can lead to the body using fat for energy because there are not enough carbs present to burn. Your blood sugar could remain normal or even be low in this case but your body could still be producing ketones.

From; http://beyondtype1.org/ketones-the-6-must-knows/

Conclusion

My conclusion is that, like diabetes, ketones need to be treated seriously. They are not always scary but you need to know why, when and how. And remember, if in doubt call your D-team. A quick phone call equals peace of mind.

Sources of information about ketones;

 

The Sneaky Low

I hate when the hypo just comes out of nowhere and hits you hard!

It a very rare occasion that I have a hypo around lunch time. But yesterday, totally unexpected and without hardly any warning a 2.6 mmol/l (46.8 mg/dl) knocked me for 6.

I had been working upstairs doing light household chores. I decided to take a break and make some lunch because my CGM alarmed telling me that my blood sugars were 4.3 mmol/l (77.4 mg/dl) and I felt a bit on the shaky side but not much.

I threw a lunch together and sat down to check, dose & eat. WHAT!!! 2.6!!!!!! Then I realised not only was I actually shaking but I was sweating profusely. I decided to hold off on my lunch, which was low carb and protein – not a good start to treating a hypo, and I quickly chewed 3 glucose tablets.

I stepped away from my lunch to allow the glucose to kick in without obstruction from protein. I can’t believe I was that rational!!! Then again, I couldn’t figure out what I should do with my insulin dose – I should obviously reduce it a little. But should I include the glucose tablets in my carb count.

Fifteen minutes later I was still shaky but I think my brain was pulling itself together again. I checked my blood sugars again and I was 3.9 mmol/l (70.2 mg/dl), the food was sitting there waiting for me. I decided to put it out of its misery.

I took my reduced insulin dose at this point. It seemed like the right thing to do to avoid the low blood sugar rebound. I knew that the sweating had stopped because I got the chills but the shakes were still there and didn’t quite go away for about 30 minutes.

I did have to top the carbs up twice over the next two hours to keep my blood sugars in the safe zone which was another unusual circumstance for me.

The lesson learned today is to not to try to sneak household chores in before lunch! And always use diabetes lessons to avoid household chores 😀

Exercise is Changing Diabetes

Changing DiabetesI can take or leave cycling…. Actually, if you take one look at me you can tell that I just about tick that box for exercise. ▖✓

However, this video came up several times in my twitter and facebook feed and on the 3rd time seeing it I thought maybe there is something in that that I should see and hear.

The answer is YES there was! It’s a 7 minute video filmed by the BBC and I feel, that it is a must see for all people with diabetes. Believe it or not there are still health care professionals in Ireland telling newly diagnosed people to give up exercise, especially competitive sports with their diabetes! 

These amazing people are changing the public’s perception of diabetes all over the world. It’s so powerful to hear about how much time and effort they put into their diabetes management and still make strides competitively. Team Novo Nordisk is the only all diabetes pro cycling team on the planet.

Phil Southerland, founding member of the professional cycling Team Type 1 speaks about how in a time where children with type 1 were not encouraged to exercise his mother saw something positive in his numbers when he did.

Our very own Stephen Clancy from Limerick is a member of this diabetes cycling team that is planning to compete in the 2021 Tour de France. His voice is featured in the introduction to the NovoNordisk promotional video. Stephen was aged 19, and on the path to a successfully career in pro-cycling , when he was diagnosed with type 1 diabetes. He was told to give it up!

Stephen Clancy

Thankfully, sometimes it pays off to not listen to your medical team. Please share this video and encourage our children with diabetes to not give up on their dreams because of diabetes and to inspire others.

The Luck of the Irish

As we celebrated St. Patrick’s Day last week, I began to reflect of what it’s like to be a person with diabetes living in Ireland.

St Patricks Day

The luck o’ the Irish is often referred to in movies, etc, but in actual fact, when it come to diabetes, I think we should called it lucky to be born in Ireland.

We have socialised medicine here, we called it public healthcare. It gives us free test strips, blood glucose meters, insulin and lots of other diabetes medicine without any stipulations.

Private healthcare is an option here too but it usually only covers hospital treatments, although the insurers are starting to cover primary care visits a little.  With private health insurance you could get a private scheduled appointment with an endocrinologist but you don’t, in most cases, get the backup of a diabetes nurse specialist or a dietitian.

When I hear stories from my friends in America, especially when I read Riva Greenberg’s piece in the Huffington Post about battling with health insurance companies for diabetes supplies I’m truly thankful that the reason Diabetes Ireland was formed in 1967 was to ensure that diabetes was included on the Health Service’s list of long term illnesses and therefore providing us with free medication and supplies.

We also have excellent health care professionals working in our clinics, just not enough of them.

Sure, there are lots of other things that we don’t have but we are advocating strongly for, such as national access to structured diabetes education, access to psychology, unlimited access to insulin pumps and continuous glucose monitoring.

And dealing with the health care professionals outside of the diabetes setting is frustrating. And yes, I did have to haggle with my diabetes team to make sure I got my insulin pump 6 years ago and my CGM last November. And yes, sometimes I don’t feel listened to at my clinic. But these are problems that are global.

But we don’t have to beg, wrestle or finance our basic diabetes needs.

Undiagnosed Type 1 Diabetes Kills – please share

Up to 5 Children and teenagers are diagnosed every week with type 1 diabetes in Ireland, according to Diabetes Ireland.

In 2014, 1 in 6 children diagnosed with Type 1 diabetes were admitted to hospital with a potentially life-threatening condition called diabetic ketoacidosis (DKA) which can occur if a Type 1 diabetes diagnosis is delayed.

The purpose of Diabetes Ireland’s Type 1 Diabetes Awareness Campaign is two-fold.

The first is to encourage GPs to consider Type 1 diabetes first, as a potential diagnosis when a child presents feeling generally unwell by performing a simple finger prick glucose test to lead to prompt diagnosis.

A delay in diagnosis usually means repeated visits to the GP and can result in diabetes ketoacidosis (DKA) which is potentially fatal.

And secondly, to raise awareness among the general population of Type 1 Diabetes signs and symptoms (The 4T’s; Toilet, Thirsty, Tired and Thinner) which can attack completely at random.

I was diagnosed with type 1 diabetes when I was 20 years old, I have no family history and my lifestyle was quite healthy. I cycled to college and I ate relatively healthy for a student with no money.  *** A healthy lifestyle or not having a family history of diabetes does not protect you from Type 1 Diabetes. Sometimes, there is no rhyme or reason.

T1D Awarness 2016

 
 The following are just a few of the tragic stories that have made news headlines;
 You might be fooled into thinking that we are protected in Ireland and that these cases only happen in other countries.  But, seriously, how can we be different?
 
If this post has stirred something in you and you want to do something to create more awareness of Type 1 Diabetes, please share this post or share the facebook post from Diabetes Ireland‘s Facebook page to whatever social media platform you use.
 
Please share.

Just in case you’re wondering; what is DKA?

” Diabetic ketoacidosis is a life-threatening problem that affects people with diabetes. It occurs when the body cannot use sugar (glucose) as a fuel source because there is no insulin or not enough insulin. Fat is used for fuel instead.
When fat breaks down, waste products called ketones build up in the body.” Find out more here and there is more information on Diabetic Ketoacidosis Explained at DiaTribe
 

What Good is an Insulin Pump?

Before I state one of the benefits that an insulin pump provides me with, I would like to point out that I believe that they are not for everybody. Off the top of my head, I can name three people who have public profiles who do not use insulin pumps and still do brilliantly with their diabetes management.

Insulin Pump DeMystifiedGood diabetes management is possible while using multiple daily injections. An insulin pump won’t magically fix most of your problems with your diabetes – they are a lot of work. So if you are interested in moving to a pump, do your homework and find out exactly how you might benefit, google them, read book on them, talk to one of the representatives from the 2-3 companies who provide pumps in Ireland, talk to other people who have used them, and talk to people who tried them and it didn’t work.

 

Now for my story….

I met two people recently that I’ve known for a while, but I didn’t know they have connections to type 1 diabetes. One person is a PwD and one is married to a PwD.As always, the fact that I have an insulin pump comes up in conversation. And, as always, they ask “how I find the pump?” (that’s an Irish person’s equivalent of “Tell me exactly how you benefit from having it”).

They don’t really know what an insulin pump is or how it works. This doesn’t surprise me because unless you are very interested in getting one you really don’t do the research into it and in most of our diabetes clinics it’s not really explained. (No need to promote what long waiting lists and lack of resources prevent you from providing).

Both people made the exact same comment of “but you still have to do the finger prick tests”! I wasn’t expecting this comment so my response was insufficient. I had said something to the effect of “Well, yeah but I don’t have to be messing around with two different types of insulin.”

COMPLETELY, forgetting one of the best advantages of an insulin pump!

And I’m so kicking myself that I didn’t think of this at the time but the point is you don’t have to stab yourself with a needle 5-6 times per day, you only have to stab yourself once every three days. How could I forget that?

Photo from www.diabetespharmacist.com
Photo from www.diabetespharmacist.com

 

Next time I’ll be ready! I hope.

If you are looking for a bit more information on the differences between an Insulin Pump and Multiple Daily Injections, here’s some information from http://blog.diabetv.com/differences-insulin-pump-injection/

photo from Medtronic's website
photo from Medtronic’s website

You Never Know Where People with Diabetes will Pop Out From

You never know where one of our comrade in arms will pop out from. We are everywhere! You may not think it but we are. My neighbour across the road from me who I’ve know for at least 5 years, only told me at Christmas that he has type 1 diabetes! 

And here’s another one for you.

I have no qualms about saying that as an Irish housewife I love going through the Aldi Supermarket weekly ad magazine. Always looking for a bargain, I am. Or a nice surprise. Just in case you are not familiar with Aldi, they don’t just do groceries, they also do “nice” things.

And so there’s that very bright smile jumping off the page at me. Yeah, the kid’s cute too. But I’m taking about Stacey Moloney, fellow person with type 1 diabetes.

new doc 45_1

I came across Stacey last year during the Irish Blog Awards. Stacey’s blog, Your Mindful Guide was one of the finalists in the Best Health & Wellness Blog category. She very generously allowed me to write a guest post on her blog to promote the Thriveabetes conference in 2015.

She attended Thriveabetes 2015 and we got to meet face to face, ever so briefly. And she wrote about her experience at it. See it here.

Stacey has lived with type 1 diabetes since she was 9 years old and was hospitalised for two weeks when she was diagnosed. She is now in her twenties and let me tell you she is living every minute of it. Diabetes is NOT holding her back.

The aim of her blog; Your Mindful Guide is to spread positivity, change the ‘tree hugger’ stigma attached to recycling and make it accessible, fun and trendy. Are you ready start your journey to becoming healthier in every sense of the word, mind, body, and soul?? Then you share the same passion as me. This is my life – to inspire and encourage you to live your life the best way possible and learn how to become more mindful.

As well as being owner of her own website and blog she is a marketing executive at WEEE Ireland, a non profit private company that promotes recycling electrical appliances, equipment and batteries, which is why there is such a nice photo of her in the Aldi catalog. Aldi Ireland are the WEEE Ireland Retail Battery Collector of the year 2015.

Stacey with Joe Solowiejczyk

You really do not know where you will meet fellow people with diabetes but if you talk about your diabetes you might meet a friend.

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